The American Society on Aging, along with Compassion & Choices, hosted a webinar recently on honoring the end-of-life care wishes of those with dementia.
Also check out this interactive exhibit that discusses end of life care from a variety of individual perspectives.
This is an issue that I encourage everyone to consider, as my father’s end of life care was not what I wanted it to be. But without a roadmap (as is discussed in one of the videos above), my mother and I were forced to muddle through on our own. As I discussed in my book, The Reluctant Caregiver, my mother and I were at odds when it came to care options for my father as he neared the end of life. This is a common occurrence in families and can create regrets and guilt.
That’s why I suggest not waiting when it comes to discussing end-of-life care wishes after a dementia diagnosis. I also would like to point out that in the top video, honoring choices is the focus, but there are times when those wishes can’t be honored, for a variety of legitimate reasons. The ultimate goal is safety for your loved one and those caring for them.
Photo by Centre for Ageing Better on Unsplash.

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