Meet author and Alzheimer’s caregiver advocate, Joy Johnston

Such an honor to be including in this group of authors writing about Alzheimer’s and dementia.

AlzAuthors

Joy Johnston 1I write about Alzheimer’s because my father’s experience with the disease turned me into an advocate, not just for those with Alzheimer’s, but for their caregivers as well.

My father lived with Alzheimer’s disease for about four years. In that time, my father went from fully independent to living in a memory care center. My mother went from healthy and active to stressed and exhausted, and I believe the prolonged period of stress contributed to her colon cancer diagnosis, just six months after my father died.

As a long-distance caregiver, I experienced my own challenges. It was difficult keeping track of my father’s condition, as details were filtered through my mother’s optimism, which was welcomed at times, and a hindrance at others. Because my father had not shared his end-of-life wishes, my mother and I were forced to muddle through those difficult decisions. I now encourage everyone to document their…

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1 Comment

Filed under Memories

One response to “Meet author and Alzheimer’s caregiver advocate, Joy Johnston

  1. Wonderful piece, Joy. Enjoyed reading it.

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