As family caregivers to those with Alzheimer’s or other forms of dementia, we can feel helpless in the fact of such a brutal disease. What could we possibly do to help find a cure or effective treatment? While we know researchers are hard at work, they can seem far removed from the daily grind that a family finds themselves in when dealing with dementia.
Joining a registry is a simple way to contribute to the cause. I belong to the Alzheimer’s Prevention Registry. According to the registry, 80 percent of studies are delayed because too few people sign up to participate. So you can really make a difference.
A new registry, the Synexus HealthyMinds Registry is seeking those 50 and older in the U.S. who do not have an Alzheimer’s diagnosis. The registry is free to join and all participation is done online for your convenience. Once a year, you will be asked to fill out a health and lifestyle questionnaire and take a series of online tests to gauge cognitive function. The registry I participate in is similar and I actually enjoy the tests because they are like brain games.
Check it out and if you are interested, please join and share with others. We are all in this important effort together.
3 responses to “Do your part in the fight against Alzheimer’s by joining new registry”
I would love for you to help us spread the word of a new survey on dementia travel at/through airports.
I am very excited to share our survey on Dementia Airports Travel is ready to push out and we are tapping those on the shoulder in the industry to help share so we can collect stories and data needed to improve their travel experiences in the future.
You can learn more about the survey here
Here is a direct link to take the survey
If you would like a flier just reach out and tell me where to send it too.
Please feel free to reach out to me with any questions you may have.
Thank you for your help!
Lori La Bey
Thanks for the info, I will share.