I totally agree with this! It serves as a good reminder to all of us, and especially those of us who work in the media world, to use person-centered language and not associate someone solely with their disease. Alzheimer’s and other forms of dementia take enough from a person without us contributing to the problem.
Let’s talk about patients. You probably think that’s a typo. I know that it’s not rare to see a typo in my blog. You probably think I meant patience–but I didn’t. I want to talk about dementia “patients.” First, an analogy… My husband, Bill, has had terrible acid reflux since adolescence. He takes medication everyday. […]
Read the full post via Patients in Dementialand — Welcome to Dementialand
This blog post by Bobbi Carducci is a good reminder on how dementia caregivers must learn a new way to connect and communicate with their loved one, as verbal skills begin to decline. She offers good tips on how you can manage some of the most difficult dementia behaviors.
Often the behavior of someone with dementia is so changeable and unpredictable it’s almost impossible to figure out what is going on, leaving the caregiver confused and frustrated. Why is your spouse confused with you and so alert when someone comes to visit? Why does your mother, who is usually calm and agreeable, suddenly become […]
via 4 Disturbing Dementia Behaviors and How You Can Go From Frustration to Connection — The Imperfect Caregiver
I relate to this post so much. We all have our individual ways of coping with grief, but there are some emotions surrounding grief that many of us feel. I’m sharing this post from a fellow blogger who recently lost her beloved cat. Whether pet or person, losing a loved one is hard. If you are struggling through the grieving process right now, you are not alone. Be kind to yourself.
I forgot how much grief hurts. Sounds stupid but it’s one of those pains I try not to remember. It’s both physically and emotionally exhausting, sucking out joy wherever it goes. It’s not always about death. We grieve many things but the commonality is that it is permanent. We don’t grieve the temporary. There are […]
via Odds and ends on grief — Views and Mews by Coffee Kat
Caregivers, try practicing the art of saying “no” during the increased demands of the holiday season. Not only is it acceptable to say no, it is healthy and necessary so that you don’t get burned out. Saying “no” can be the beginning of an equally important conversation: “I need help with caregiving.”
We welcome back guest writer, Kayla Matthews to The Purple Jacket! Caregiving for an elderly relative is a role that falls on different family members and professional caregivers depending on the family and expectations. And many families often fail to discuss how much responsibility a caregiver should take on and for how long. When the […]
via When You Should Say “No” in Caregiving — The Purple Jacket
The battle over driving can be one of the biggest and most heated that a family dealing with dementia has to face. Read this post from Dealing with Dementia to gain some valuable insight.
Kids want their parents to be safe, and their parents want to maintain their independence.
via Driving, Dementia, and the Right to Drive — Dealing with Dementia
Good tips here! While my dad retained a remarkable appetite when he was in the memory care center, when he landed in the hospital, his appetite dissipated. Caregivers should be prepared to “bend the rules” and let dessert be eaten first, etc. In the end, it doesn’t matter about the order of consumption, as long as your loved one is happy and eating.
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via Food And Alzheimer’s: How To Maximize Nutrition And Make Mealtimes Easier — The Diary of An Alzheimer’s Caregiver
A good reminder that not everyone reacts well to fireworks, including people with dementia. (This can also apply to people with autism and pets, among other groups.) Have a safe and happy Fourth of July!
As if sundowning weren’t a challenge for those with dementia and their caregivers we add fireworks to the mix on July 4th each year. A person who once loved fireworks may respond differently now. For someone with dementia, the loud pops and explosions can trigger memories of wartime experiences causing a return or worsening of […]
via Fireworks and Sundowning – Not a Happy Fourth of July — The Imperfect Caregiver