Category Archives: Memories

Holiday Tips for Caregivers

These are great tips for us all to remember as we approach the holiday season. Also keep in mind that not everyone feels cheerful during this season. I know for myself, I approach this week with trepidation, because two years ago it was the beginning of the end for my father.

alzga's avatar Georgia Chapter Blog

thanksgiving

For most families, holidays are filled with opportunities for togetherness, sharing, laughter and memories. However, holidays can also be filled with stress, disappointment and sadness. This is especially true for individuals experiencing memory loss or other dementia symptoms and their caregivers. See below for a few tips that may help make the holiday season a little less stressful:

  • Give yourself permission to do only what you can reasonably manage. For example, instead of hosting 15 -20 people at your home, consider hosting just a few or consider having a potluck dinner and asking others to bring dishes to contribute. 
  • Let visiting friends/family know what your care giving situation is so that they can have realistic expectations about what kind of visit they will have and, if possible, how they can be helpful to you if you’re also trying to make holiday preparations.  
  • Try to maintain the person with memory…

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Where was Dad when JFK was shot?

Unless you have been living under a rock this week, you’ve probably noticed the media coverage of the 50th anniversary of the assassination of President John F. Kennedy. Many people are taking to social media outlets to report where they were when they heard the sad and shocking news.

Source: patrioticcoloringpages.com

Source: patrioticcoloringpages.com

Since I wasn’t born yet, I have to wonder where my parents were on that fateful day. I’m pretty sure my mom was in the Navy but I’m sure she will let me know in our next phone conversation. I’ve written many times on this blog about how my Dad practically worshipped the Kennedy family. So I know he would have taken the news particularly hard. His naturalization record is dated 1965, so I’m guessing that in 1963 he was already in the Los Angeles area. Since it happened on a Friday afternoon, I’m guessing he would have been at work, but sadly, I don’t know where exactly he was when he heard the news.

And that’s not because Dad didn’t talk about it. I’m sure he told us on several occasions where exactly he was and how he felt, etc. But I never recorded the information. In fact, I probably ignored it, because when Dad started talking about the Kennedy family, he could go on for a long time. As a teenager, I never thought I would care about remembering such information. But of course, you grow up and wise up.

And now I’m left wondering where Dad was and how he felt on such a personally devastating day. Don’t be left like me, with gaping holes in your family history. Ask the questions now, while your loved ones are still alive and able to provide you with answers.

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The Question Behind the Question

Great post! It is important for those of us who are caregivers to learn that if we are not getting the answer we expect or want from our loved one, perhaps we are asking the wrong question (or the right question but the wrong way.)

Kay H. Bransford's avatarDealing with Dementia

mailpileFor two weeks, my Mom has been relentless on the topic of mail. Some days, she will call more than 5 times in an hour to discuss the topic. “Kay, I’m not getting any mail. Are you getting all of my mail now?” Nothing has changed, so I’m a little confused about her question.

I’ve been in her apartment when the mail is delivered. The remnants of the mail can be found on her bed, the entry hall table, next to her favorite chair, why does she not recognize that she is getting mail? Some days she gets as many as 9 pieces of mail. After a few days of her calls, I ask my Mom what was she expecting and not getting in the mail?

“I’m not getting any condolence notes, where are they going?” Ah-ha! I now understood the question she was really trying to ask, but was…

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Bringing cheer to loved ones who are ill

And now for a shameless plug. I submitted a story about taking care of my mom when she was in the hospital to an online callout from an author. My story was accepted and the book has been released. The book’s title is “101 Awesome Things to Do for Someone Who’s Sick” by Elaine Wilkes, PhD. It’s a collection of sweet, fun or thoughtful things you can do for someone who is ill. The Kindle edition of the book is only 99 cents through 10.22.13.

awesome_sick

My entry is titled “Find Something to Entertain Them” and it’s on page 217-218. It’s about the joy that a talking parrot toy brought my mom while she was recovering from cancer surgery last year. As I’ve written before, Polly the Parrot also brightened up my Dad’s spirit while he battled Alzheimer’s.

I don’t make any profit from the book but I just want to pass the info along because I think it might be of interest to those who follow this blog. It would also make an ideal gift for a caregiver. I haven’t had the chance to read through all of the ideas yet, but so far I have been amazed by people’s kind-hearted gestures.

I would love to hear the kind gestures you have performed for a loved one who is ill!

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Michael’s Story – Living With Dementia

Michael’s story is a brutally honest and heartbreaking personal story of living with dementia.

Alzheimer's Speaks's avatarAlzheimer's Speaks Blog

Michael’s Story

micheal_ellenbogen

Living With Dementia

Check out Michael’s beautifully written story of what life is really like, living with dementia.  Katie Couric featured his article on her program yesterday where she covered the disease. 

Kudos Michael for connecting with Katie! 

Keep up the great work.

For more resources check out Alzheimer’s Speaks Website

Alz_Spks_Logo_Website_090413

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Join Alzheimer’s Speaks Radio and Max Wallack Author Of The Amazing Children’s Book On Dementia

Kudos to this young man who is raising Alzheimer’s awareness in unusual and creative ways. What an inspirational story!

Alzheimer's Speaks's avatarAlzheimer's Speaks Blog

JoinAlzheimer’s Speaks Radio

 

and Max Wallack

Max Wallcke cropped 2

Author Of The Amazing Children’s Book On Dementia

 

Click here to go to listen to the radio interview

max_book_cover

A Story of Love and Respect

Well you all know by now how much I love my job because I’m always excited about my guests; but today is extra special.  We are so lucky to have with us Max Wallack who is a young man who is walking his talk with dementia.  Max’s journey with his grandmother who had Alzheimer’s has set this man on a path where he is making unbelievable strides.  He is a researcher, started an organization called Puzzle to Remember and now has co-authored a book called “Why did Grandma Put Her Underwear In The Refrigerator?”

Max’s co-author, Carolyn Given will join our discussion,along with Emma Richman.  I hope you can join us as well.

Max Can be reached…

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“Sorry honey, I think you have the wrong mother.”

Sadly so many of us can understand this situation. I think the blogger handled it beautifully. What would you do if faced with this scenario?

lifeonwry.com's avatarlife on wry

Before my long weekend get-away, I visited Little Red Riding Hood (aka Mom) in her dementia facility home last week.

My usual feelings of dread – and the pit in my stomach – had been building up as I anticipated my visit. I knew that once I saw her, the pit in my stomach would begin to dissipate into the smaller, more manageable pit that’s taken up permanent residence. Sweet Clone (my youngest son) offered to accompany me.  Having someone with me every now and then takes a little of the sting out of my visits.

We arrived and I punched in the code at the front door, where a much different reality exists beyond the threshold.  This is where I take a deep breath and swallow my trepidation for how the visit may unfold.

These days Little Red Riding Hood doesn’t recognize me. For the last two years she seemed to…

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A solo performance

Friday was my 39th birthday. This year I have a lot to be grateful for, compared to the grim circumstances of my last birthday. Mom was just 11 days out of major surgery at this point last year and in a skilled nursing facility so she could learn how to walk again. She had a colostomy bag and there was no way to know if the cancer had been successfully removed at that point. I visited her at the nursing home and she labored in writing me a birthday note. I was touched by her effort, which I recorded in last year’s birthday post.

bday cake

Mom has come a long way in the last year. Things are almost back to “normal” whatever that is. Of course, Dad is and always will be the missing piece of that puzzle. As I’ve written before, the long-standing tradition was for my parents to sing “Happy Birthday” to me over the phone, since I usually was not with them for my birthday. They would practice and Dad loved the chance to break out his Bing Crosby impersonation. Last year, things were so crazy that I didn’t even think about the birthday serenade.

This year, Mom was ready for her solo performance. But as she began she was clearly choked up. It took me a moment to understand why and then I knew she was missing Dad as her duet partner. But she got through it and did the big dramatic ending that she used to do with Dad. It made me smile and tear up at the same time.

At some point after losing someone close to you, you adjust for the most part to a “new normal” in your day-to-day living. It’s in these small, rare special moments that the loss hurts the heart the most.

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Visiting Dad’s place of death

After spending time with Mom for her birthday I ventured north to Albuquerque. I haven’t been back to Albuquerque since the last time I saw my dad alive. I held his hand for as long as I could before having to catch a plane back to Atlanta. Dad was moved to a skilled nursing facility shortly after that. He died a month later, also in Albuquerque.

Presbyterian Hospital, the last place I saw Dad alive.

Presbyterian Hospital, the last place I saw Dad alive.

So I had mixed emotions about returning to the city. Of course it was blazing hot but I felt welcomed by all of the people I came in contact with, from the hotel staff to cab drivers to restaurant servers. I also finally had the opportunity to see the place where Dad passed away. Fortunately, the place seems to be well-run, clean and has plenty of natural light. It has a nice activity room with birds and plants and an impressive rehabilitation center. Of course, a visit to a nursing home is always depressing to a certain extent and there was a lady with her head resting on her chin, completely oblivious to the puzzle in front of her in the activity room. There was such hope on some of the rehab patients’ faces. I hope they are able to become independent again, to walk again, to return home, whatever their goals may be.

The view from the nursing home.

The view from the nursing home.

I liked how the facility allows residents to eat whatever they want for meals, so if they want a grilled cheese for breakfast they can have it. With adequate nutrition being such a struggle for nursing home residents, this is a positive approach to take. Also, I was greeted by a visiting therapy dog as I entered the facility. Dolly the greyhound was so sweet and gentle, I’m sure she brightened the residents’ day. The area around the facility is mainly suburban and residential, so it seemed very quiet and peaceful, with a beautiful view of the mountains in the background. Butterflies and birds greeted me on my way out. Not such a bad place to die, I suppose.

The Crossroads Motel sign.

The Crossroads Motel sign.

Perhaps the most telling sign that my trip to Albuquerque was meant to be was my hotel room. It overlooked the Crossroads Motel sign. For fans of the television show, “Breaking Bad” this will be familiar. But for me it has a deeper meaning. I was greeted by that sign each day as I looked out my dad’s hospital window back in November 2011 while he was in CCU. I remember noting how appropriate the sign was, since Dad was himself at the crossroads between life and death. And now I feel like I’m at a crossroads as well. Future career, processing grief, developing a caregiving plan for my mom, there are so many things to consider. But for now, things are looking brighter. Maybe not as bright as that Albuquerque sky, but at least Mom’s oncologist just gave her great results and she continues to improve and remain independent.

It was a good trip. I feel like now I can appreciate Albuquerque for being more than where my father died.

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Dementia and Suicide

Good information here to start an important discussion regarding suicide rates among Alzheimer’s patients and their caregivers.

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