Most of us think we have more time than we actually do … So many times, after my mom passed, I wished I’d asked her about this person or that event. – Stacy Monson
So true! The Memories Project began as a way to honor my father and the further I went in documenting my father’s stories, the more I realized I was missing important details. That is why I urge everyone to ask your loved ones to recount their life stories and anything else they want to share. It’s so easy now, literally a tap on a smartphone button, and you can record these precious memories.
Read the blog post along with a great list of questions to get you started by clicking the link below:Preserving Memories With a Loved One—Questions to Ask Before it’s Too Late — The Diary of An Alzheimer’s Caregiver
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Preserving Memories With a Loved One—Questions to Ask Before it’s Too Late — The Diary of An Alzheimer’s Caregiver
The 20th anniversary of 9/11 is coming up and there will be many powerful reports, essays, and accounts written to mark the somber occasion. Remarkable pieces have been published over the years about 9/11, such as The Falling Man. An essay published in The Atlantic recently is one of the most well-written and moving accounts I’ve ever read. On the surface it’s about a family’s struggle with losing a loved one on 9/11, but peeling back the layers with both compassion and clarity, Jennifer Senior reveals much more than meets the eye.
One of the more interesting aspects of the essay to me is the impact that trauma and grief have on our memories. It’s a lesson that may serve dementia caregivers well. Getting the details just right may not be as important as how we are able to process past traumatic events in the here and now. Sometimes remembering a specific word is less important than conveying the meaning and emotion of the message.
Another important lesson learned from this family’s heartbreaking experience is that grieving can cause us to act in ways we don’t intend. Communication can become difficult. It’s important to give those who are grieving space to process what they are feeling. Be a compassionate listener. This essay captures in vivid detail just how different the grief process can be for members of the same family.
The 9/11 anniversary is coming at a time when our nation is reeling from the deadly coronavirus pandemic. There are many of us grieving right now. I would encourage all of us to remember that as we go through our daily interactions. A moment of kindness can make a big difference.
Today would have been Dad’s 89th birthday. This year will mark 10 years since his passing. It’s hard to believe that much time has gone by, and how much the world has changed in just a decade.
I’ve always loved this series of photo booth shots. I wasn’t an entirely cooperative model but Dad’s beaming smile makes up for it. Dad rarely smiled in photos as he was self-conscious about his teeth, so the wide smiles in these shots are extra precious. He was definitely a proud papa.
Whenever I learn of someone’s passing during the holiday season, I feel an extra pang of sympathy. Losing a loved one at any time of the year is devastating, of course. But there is something about loss during a period of such joy for others that is particularly painful.
Today it has been eight years since my father’s death. So much has happened since then, yet it’s still hard to believe that it has been so long since his passing. I remember how odd the Christmas decorations and Christmas music blaring everywhere seemed to be after I learned the news of my father’s passing. It’s a tough lesson to learn in such a fragile state: the world goes on without your loved one.
If you find yourself grieving this holiday season, cut yourself some slack. Don’t feel obligated to put on a happy front. There are many others just like you who feel conflicted emotions during this time of year. Hopefully over time, some happier memories will filter in through the grief. If you know someone who has lost someone during the holidays, reach out to them and offer your support.
I hope you and your loved ones have a holiday filled with peace and love.
Those of us who have dealt with Alzheimer’s in our families know just how particularly cruel this disease can be. Much of that has to do with the loss of the person, their personality and memories. They become a shell of the person they were and it can be difficult for family members to adjust. This thoughtful blog post below highlights the benefits of living in the present, as so many people with dementia do.
“Memories warm you up from the inside.” This was written in fancy cursive on the wall of a memory care community that had invited me to do a staff in-service. I’m not sure who decided this was a great quote to post on the wall in such a setting. I’d like to ask them about […]
A Twitter thread by a pediatrician has been making the rounds lately, and for good reason. Dr. Alastair McAlpine asked some of his terminal pediatric palliative care patients what has mattered the most to them in life, and what has given their lives the most meaning. The children’s answers are both simple and profound, and something we adults should take to heart.
The things so many of us are hooked on, such as television or social media, did not make the kids’ important list. Family, pets, books and ice cream did rank high. These young souls whose lives will most likely be cut short barring a medical miracle shared a couple of values they found to be the most important. Kindness and a sense of humor made the list, not wealth or celebrity.
I encourage you to read the short thread on Twitter. At the end, Dr. McAlpine offers a takeaway for all of us.
We could all use a reminder to let go of negative thoughts and regrets and focus on the truly important people and things in our lives.
At the very least, we can commit to enjoying more ice cream.
It started out with good intentions. Facebook created a feature called “On this Day” that reminds users what they had posted a year ago, two years ago, etc. The prior year posts are flagged in your newsfeed, and you can choose whether to share them with your friends or keep it private.
While no doubt the idea was to remind people of happy memories, such as births, weddings and family vacations, for some of us, our Facebook timelines are filled with depressing posts.
If you are a long-term family caregiver, your timeline may look more like a roller coaster of memories, with good, bad and the ugly all present.
I’ve ran into a few issues with prior posts that brought up memories of my mother, and that summer of 2012 when she was recovering from cancer. There have also been some “On this Day” posts featuring departed pets. Not always the thing you want to greet you as you start your day.
Being on Facebook is a part of my job so I cannot simply ignore it.
As it turns out, other Facebook users were also having a bittersweet experience with this new feature, so now there is a filter option. Users can filter out names and/or periods of time to skip over painful memories like deaths and divorces.
If only it were that easy to filter out bad memories in real life. Still, I believe that the ups and downs of life are all part of the experience of being a human being. While I am glad Facebook added the filter feature, I haven’t actually used it yet.
If I was strong enough to survive the actual experience, I can also survive the memories.
Today is my birthday, and I have to say I don’t mind being a year older. At least it offers me a symbolic new start, as 40 was one of the most difficult years of my life.
I’m having a lovely time in the mountains, but there is of course one thing missing. As I’ve mentioned previously on this blog, my parents always made a big production out of singing “Happy Birthday” to me over the phone.
I have a poor recording of Mom singing “Happy Birthday” to me last year, recorded from my cellphone. It’s only barely listenable, but I’m glad I have it.
I do have a good video and audio version of my parents singing “Happy Birthday” to me, but sadly, it was when Dad was rapidly declining in the care facility. The staff had him so drugged up that he could barely stay awake, and he mumbled through the song. Mom tried to compensate by being overly cheery, but I know her heart was breaking inside.
Just the year before, Dad belted out the best version ever, and even sang another classic crooner song. That is the recording I wish I had.
While I sometimes feel that in today’s world, people are so busy recording their lives to post on social media that they forget to be in the moment, the upside is that they will have all of the moments recorded to cherish later.
So my birthday wish is for everyone to experience and if so desired, record loving moments with their family. It truly is something we often take for granted, until the opportunities no longer exist.
Today I want to highlight a nonprofit organization that I just stumbled upon. They’ve been around since 2009, so many of you may be familiar with them, but I wasn’t. The group is called The Spaces Between Your Fingers Project and the group writes memory snapshots for people with Alzheimer’s that are recorded on postcards and sent to families. The service is free, and a copy of the memory postcard is kept in the Free Library of Philadelphia for archiving purposes. The organization has collaborated with the Alzheimer’s Association in the past. The group also has set up an online tool that allows anyone to record a memory postcard, whether they have dementia or not.
I love this concept, it is so unique and is a great way to encourage people to record family memories. If you are wondering what “the space between your fingers” means, there is a lovely storybook on their site that takes you through the very touching tale inspired by the founder’s grandfather. You may look at Alzheimer’s in a whole new light.
I plan on giving the service a try soon and will share what I create.
What is the first memory from your life that you would want to preserve?
A memoir that relies heavily upon the memories of a single life-changing event is “Half a Life” by Darin Strauss. I’m sure you’ve read many stories about a tragic car accident that claims the life of an innocent person. While often alcohol and drugs are involved, sometimes these events are truly accidents, with no direct fault assigned to the person behind the wheel. Have you ever wondered what happens to these people? To know, even if you weren’t directly at fault, that your actions claimed the life of another human being … how would you manage to go on with your life carrying that memory? Well, author Darin Strauss knows, because he was the person behind the wheel of the car that struck and killed a classmate who was riding a bicycle.
Strauss had just turned 18, and perhaps the inattention and inexperience of a young driver played roles in the accident. Still, no charges were ever filed and his community, even the deceased classmate’s parents seemed to forgive Strauss. But then the grieving parents decided to sue Strauss for millions of dollars, and the case dragged on for several years, thwarting Strauss from moving on with his life. Even though he saw a therapist, he never worked through his guilt and other feelings surrounding the tragedy. He did what many of us try to do during difficult situations: he put a smile on his face and carried on, suppressing his emotions.
The memory of the accident haunts all facets of his life, from work to friendships to the dating scene. Not only do the lingering memories of the accident have a negative impact on his emotional well-being, they physically make him ill and he has to have stomach surgery before turning 30.
Finally, as he marries and becomes a father, he decides to engage in the best therapy of all for a writer: he would write about the experience in a memoir. The result is a powerful work, and a lesson for all of us trying to process difficult memories. I was very moved by this book and highly recommend it.