The secret lives of hospital staff members

When a loved one is in the hospital, you come into contact with a whole array of professionals that you might not meet otherwise. During Dad’s November 2011 hospital stay in Albuquerque, we met a fascinating respiratory therapist.

While he was twirling dials and recording data off of Dad’s ventilator machine that he was in charge of managing, the respiratory therapist told us about the novels he had written. One was about a serial killer, and I can’t remember what the other one was about, but it had a complicated plot line. He said the two books had TV rights picked up by HBO. There was no particular reason to lie about it, so I guess he was telling the truth. With all of the events that have transpired this year, I haven’t had time to follow up on his projects to see if they ever saw the light of day.

But beyond discussing his writing, he was just a fascinating man in general. He could fly helicopters and would help in search-and-rescue operations. He was an intriguing mix of risk and responsibility.

Since I would love nothing more than be a successful writer, I had to ask why he was still working at a hospital. He simply replied that he loved the work. I was glad to know that someone so dedicated to his work was personally taking care of my dad’s breathing needs while he was under sedation.

Recently I thought about this interesting man again, and wondered if he’s still working at the hospital or if his writing career has really taken off. As a writer, I hope for the latter, but for the patients’ sake, I hope for the former.

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Cheap cologne sets a reminder of Christmas

I had the misfortune of finding myself shopping in Walmart today. Mom wanted to stock up on some things prior to surgery, so she wouldn’t have to worry about it when she is released from the hospital after her surgery.

Any kind of giant store like Walmart makes my vertigo go crazy. The entire store is sensory overload, and then there’s the constant dodging of other customer’s carts. Mom went to get her hair done so I was left alone to shop. (And if you’ve ever shopped with an elderly woman, you know it’s preferable to shop alone!)

cologne

As I sped through the Christmas gift section, to get from the pharmacy department to the grocery side of the store, my gaze picked up a gift box of men’s cologne. It immediately gave me a pang in my heart. Every year, I would buy Dad one of those box sets of cologne. I would usually get Stetson or Grey Flannel. It was an easy to select gift that I honestly never put any thought into. Dad wasn’t into presents, so he never asked for anything specifically. I didn’t want him to feel left out so I tried to get him almost as many gifts as I would get my mom, who would gush over every little cheap trinket I would get for her.

Dad always seemed to appreciate the cologne, even if all he did was mumble a thanks when he opened it. He definitely used it every day, and the scent of men’s cologne will always remind me of my father.

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First snow brings sad memories

Last night, the first snow fell at Mom’s house. I’m staying with her until she has her colostomy reversal surgery this Friday. In 10 days, it will be the first anniversary of my father’s death.

snow-edit

The snow is beautiful, but also is a silent and stark reminder of the sad events that have plagued my family over this past year. I wrote about this more on Cowbird.

Over time, I’m sure I will be able to enjoy the beauty and pleasure snow can offer, but right now, it’s just a reminder of difficult times.

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Pretending to be normal

As I mentioned in my post on Christmas cards, no one wants to be Debbie Downer during the holiday season. I’m now facing back-to-back depressing holiday seasons. It is an added strain to smile and say “happy holidays” to well-meaning strangers right now.

I think Dad was always a bit melancholy because his mother passed away pretty close to the holidays and that loss haunted him for the rest of his life.

So I cannot just pretend that the sad events of the past year didn’t happen, but it does make you rethink your priorities during this season. It should be less about gifts and more about spending quality time with those you love.

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The fruitcake follies

Neither of my parents were able to see their relatives during the holidays. They all lived across the country or across the globe. So my mom started a family tradition by sending her relatives in Tennessee fruitcakes for Christmas.

Did her family really like the annual gift of the holiday dessert that has long been the butt of jokes? Well, one of her sisters said she froze it, so I’m not so sure. (I think it may still be sitting in her freezer!)

fruitcake

Well, after watching Mom order a slew of fruit cakes each year for her family, Dad decided he wanted to get into the fruitcake-ordering frenzy. Of course, things were a bit more complicated because Dad’s relatives were in Ireland and Australia. So there were some shipping snafus (and expenses) involved. I remember hearing nothing but fruitcake ordering drama for a week or so, until it all got straightened out. And Dad’s family never received another fruitcake! (I’m guessing they were secretly relieved!)

But I’m reminded of our family’s fruitcake story every time I see an ad for Collin Street Bakery.

It’s funny how something as trivial as an ad can bring back a memory so clearly.

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Dad’s headache in the maternity ward

Dad was always a bit squeamish when it came to pain or any kind of medical procedures. So it’s not surprising that he wasn’t exactly a “hands-on” Dad when it came time for Mom to give birth to me.

Even though Mom was 37 and I was her first (and as it turned out only) child, Mom had a surprisingly easy labor. Mom’s water broke while Dad was working one evening. He rushed home and off to the hospital they went. I was born a little after 10 p.m. Mom was only in labor for a few short hours. (Well, once the contractions kicked in, the hours may have stretched for Mom, ha.)

My dad holding me as a baby. Such a happy photo.

My dad holding me as a baby. Such a happy photo.

Apparently Dad disappeared shortly after Mom was taken to a hospital room and was being prepped to head to the delivery room. He took off in search of some aspirin for his “headache.” He probably needed something a bit stronger than that to get him through my birth!

But he was certainly eager to see me on my first day on this earth, even with a knot on my head and some wisps of red hair sticking out from it. To Dad, I was a perfect, beautiful baby.

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Curse of the Christmas cards

Mom is debating whether or not to send out Christmas cards before she heads into surgery next week. Last year, with Dad being so ill and then dying right before Christmas, we understandably skipped the cards and celebrations. This year, Mom has a darn good reason to skip the cards again.

It’s a bit awkward to write Christmas cards when you are ill or are caring for a loved one who is ill. There are so many dark days and painful memories better left unmentioned in a card that is supposed to be full of happy greetings. My mom can’t exactly say, “Just wanted to get this Christmas card to you in case I die during surgery!”

xmas-cards

I remember coming across several unmailed Christmas cards that Dad meant to send to his family overseas. There were some from the year when he would have been in the early stages of dementia. Everything was addressed correctly, he just put them in his nightstand drawer and forgot to mail them. By the next year, he had moved into the mid-stages of Alzheimer’s. The addresses were a mess. He put his own address label in the “to” field. On one envelope he wrote the same address in the “to” and “from” fields.

It was yet another sad sign of my father’s mind crumbling away, even as the holiday cheer carried on all around him.

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Online ways to help the fight against Alzheimer’s

I often felt that I did not do enough while Dad was alive to combat the Alzheimer’s that was robbing him of so much. But now that he is gone, I am trying to make amends by becoming involved in various causes to help promote research and treatment for Alzheimer’s. One thing I did recently was join the Alzheimer’s Prevention Registry. If you have a loved one who has been impacted by Alzheimer’s, it’s worth taking a few minutes to join the registry.

Dear Friends and Family,

Today I did something that may help save the lives of millions of people around the world. I took one minute of my time and joined the national Alzheimer’s Prevention Registry, which is working to end Alzheimer’s disease before we lose another generation.

We can meet this challenge – but only with volunteers like me and you.

I encourage you to join the Alzheimer’s Prevention Registry today! It’s a community of people interested in learning about the latest research to prevent this devastating disease and opportunities to help make an impact. The Registry will be used to inform people about opportunities to participate in prevention studies and treatment trials now and in the future. Every person who joins will help accelerate Alzheimer’s research and improve our chances of ending the disease once and for all.

Visit Alzheimer’s Prevention Initiative to join the Registry and make your mark in the fight against Alzheimer’s!

Every little step we take brings awareness. Knowledge is power.

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Gifts for those with dementia

I was reading this blog post today about gift ideas for loved ones with dementia. The holiday season can be awkward when you are trying to accommodate those with Alzheimer’s and dementia. I think often, we as family members go to one extreme or another. We either bombard the poor souls or we pretend they don’t exist. As usual, the solution is somewhere in the middle.

First of all, there is no “one size fits all” solution. Each person with dementia will react to the holidays in a different way. For example, Dad was never sentimental about the holidays and his interest didn’t change once dementia took hold. I did buy him a personalized New York Times edition from his birthday and birth year once he was in about the mid-stages of Alzheimer’s. I wish I had bought it for him sooner. I believe he was able to look at the pictures but I believe his reading ability was limited by that point. It was a gift I had meant to buy years earlier, for Dad loved newspapers and history.

gift

So one has to try to relate to their family member with dementia as much as possible. I think generally speaking, low-key, small gatherings are best, because they don’t stress out a dementia sufferer with too many unfamiliar faces and too much commotion. But again, I heard a story recently about a woman who suffered from dementia and who had loved to cook the big holiday meal before dementia took over.

So what did the large, extended family do? They each made a dish from one of her recipes, and pretended that she made it herself. The little old lady took her place at the head of the table, wiped her brow and exclaimed how tired she was from all of that cooking before digging in. The new tradition went on until she passed away.

Sometimes gifts don’t come wrapped in paper and bows. They are recreating memories of a loved one and sharing in the joy of those happy times.

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Another holiday season with illness

After enduring the ups and downs and final passing of my father just five days before Christmas last year, now I’m facing my mom facing another major surgery right around Christmas. As I’ve mentioned before, I’m not a sentimental holiday person, but you would have to be blind and deaf not to notice all of the holiday decorations and music around every corner.

Since I’ve been through this before, I know a bit of what to expect. And that’s the unexpected. You have to be flexible when you have an ill relative. This year, at least I don’t have the stress and guilt about missing time from my job. I no longer have one, for better or for worse. But as far as holiday celebrations go, I hope to make it back home for awhile before Mom needs her surgery. But I also know that I may get a call at any moment ushering me back to be with Mom. So Christmas will be celebrated ASAP.

When illness strikes and you are the primary caregiver, you must be willing to shift priorities. A holiday is just another day. One has to focus on the here and now, and what is best for their loved one who is ill.

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