I’m always open to sharing my caregiving story with individuals and organizations who are championing causes near and dear to my heart. Alzheimer’s is, of course, one of those causes. My father’s brutal experience with the disease prompted me to create The Memories Project blog.
Being Patient is an independent news site dedicated to sharing the latest and most accurate developments in Alzheimer’s and brain health research. It was founded by Deborah Kan, who was an executive producer at the Wall Street Journal before creating the site after her mother’s Alzheimer’s disease diagnosis. I love the idea of serious journalists covering the important developments going on in the world of Alzheimer’s research, so I was happy to help the cause when asked.
I contributed an article about the challenges of rural caregiving for the site’s Voices section, which puts the spotlight on family caregivers. I saw many familiar faces in that section, as the online world of Alzheimer’s caregivers is a tight-knit group. It was good to see my fellow caregivers sharing their unique perspectives. It’s so important for people who are past and present caregivers to tell their story. There are so many areas where caregivers need greater support, and there’s nothing like a heartfelt story to prompt people to take action.
What are your favorite websites for news about Alzheimer’s and caregiver support?
I often felt that I did not do enough while Dad was alive to combat the Alzheimer’s that was robbing him of so much. But now that he is gone, I am trying to make amends by becoming involved in various causes to help promote research and treatment for Alzheimer’s. One thing I did recently was join the Alzheimer’s Prevention Registry. If you have a loved one who has been impacted by Alzheimer’s, it’s worth taking a few minutes to join the registry.
Dear Friends and Family,
Today I did something that may help save the lives of millions of people around the world. I took one minute of my time and joined the national Alzheimer’s Prevention Registry, which is working to end Alzheimer’s disease before we lose another generation.
We can meet this challenge – but only with volunteers like me and you.
I encourage you to join the Alzheimer’s Prevention Registry today! It’s a community of people interested in learning about the latest research to prevent this devastating disease and opportunities to help make an impact. The Registry will be used to inform people about opportunities to participate in prevention studies and treatment trials now and in the future. Every person who joins will help accelerate Alzheimer’s research and improve our chances of ending the disease once and for all.
Visit Alzheimer’s Prevention Initiative to join the Registry and make your mark in the fight against Alzheimer’s!
Every little step we take brings awareness. Knowledge is power.