I found this Ted Talk from Dr. Elaine Eshbaugh so insightful. She talked about the connection between anxiety and dementia: “When anxiety goes up, cognition goes down.”
She offered examples of how people with dementia may face anxiety in everyday situations that those of us without dementia may overlook. I loved her term “mental energy pennies” to describe how daily cognitive tasks can be more costly to those with dementia.
She also broke down how dementia can cause vision issues, both literally and figuratively. My father experienced vision issues, including depth perception problems that made entering and exiting elevators a challenge. He also had visual hallucinations. In his case, the vision issues elevated his anxiety levels which could cause him to lash out in confusion and frustration.
Being more aware of the connection between anxiety and dementia can help family caregivers better manage their loved one’s environments.
Over 10 years ago, I wrote about an experimental blood test being tested that could help predict a person’s risk of developing dementia over the course of the next few years. There have been a lot of developments in the blood test space since then. This month, the Alzheimer’s Prevention Registry wrote about new research exploring a promising, low-cost option for large-scale Alzheimer’s screening: dried blood spots.
Not that long ago, the idea that Alzheimer’s could be diagnosed with a blood test seemed like a major breakthrough, since prior to that, diagnosis either came post-mortem or an invasive spinal tap procedure. There are cognitive-based tests that doctors use to screen for dementia, such as the clock test, but those are not as definitive in nature as a blood test for Alzheimer’s biomarkers, which was approved by the FDA in 2025.
But blood tests still present challenges, requiring a medical professional to draw the sample, and then proper handling to ensure the same remains viable until it reaches the testing laboratory. Researchers in Europe brainstormed on how to simplify the procedure and are now actively testing a process that uses dried blood spots. A person takes the blood sample themselves at home, using a finger prick method. The sample is collected on a card, allowed to dry, and then mailed into a laboratory. Early results are promising, with high accuracy rates, but more work needs to be done to perfect the process.
One interesting point that researchers noted was that people in the study didn’t like the finger puncture, so a different collection method involving the upper arm is being explored. The issue with finger punctures may have led to more sample failures than desired. I know when I used a finger prick test at home (to check my cholesterol level), the first time it worked fine, but the second time, I struggled to get a proper sample and I received notice from the lab that my sample couldn’t be used. It was a frustrating experience and I ended up going to a medical clinic for a traditional blood draw.
Still, if the process becomes reliable and affordable, I strongly prefer at-home tests. Such a test would open up dementia screening for underserved populations and help people access treatment options earlier.
Next Sunday, many Americans will watch the Super Bowl to see who will be crowned this NFL season’s champion. I will be watching and thinking of my father, who learned to love American football though soccer and baseball were dear to his heart as well.
There is a dark side to every sport, and in the NFL, the head trauma risk from the hard-hitting game along with diagnostic and research developments have identified an alarming number of chronic traumatic encephalopathy (CTE) cases among former players. CTE can cause cognitive symptoms that mirror Alzheimer’s and other forms of dementia, such as memory loss, personality changes, mood swings, paranoia, and depression. CTE has been found in the brains of high-profile former NFL players who died of suicide, such as Junior Seau.
In a new study published in January 2026, researchers at the Boston University CTE Center studied over 600 donated brains, mostly of contact sport athletes exposed to repetitive head impacts and found those with the most advanced form of CTE had a four times increased odds for having dementia. The study noted that the increased risk amount is “similar to the strength of the relationship between dementia and advanced Alzheimer’s disease pathology, which is the leading cause of dementia.”
In 2023, the Boston University CTE Center found CTE in 345 of the 376 brains of former NFL players that were donated to its brain bank. Researchers cautioned that donated samples are subject to selection biases and because CTE can only be definitively diagnosed after death, it’s impossible at this time to calculate the current prevalence of CTE among NFL players.
The Boston University CTE Center stresses that the most severe symptoms and outcomes are in the minority of cases they see, and that CTE symptoms are treatable. Former players or anyone who has suffered significant and repeated head trauma should seek professional medical care as soon as symptoms emerge.
I’m grateful to the former NFL players and their families for making the generous decision of brain donation to further the research efforts into CTE. Learnings from CTE research could benefit the spectrum of cognitive-based conditions and spur better, more effective treatment options.
It was a busy year in Alzheimer’s research. In December 2025, the 2025 Clinical Trials on Alzheimer’s Disease Conference was held. The Alzheimer’s Prevention Registry shared highlights from the conference.
Blood biomarker testing is an area of research I’ve been closely following. There have been advancements in using blood biomarkers to accurately detect abnormal blood proteins like amyloid and tau. Developing reliable, simpler, and most cost-effective diagnostic methods for Alzheimer’s and other dementias will allow people to be diagnosed and treated sooner, when the currently available treatments are more effective.
GLP-1s: You may have seen reports about drugs like Ozempic and Mounjaro, which have become popular weight management treatments, may also help reduce brain inflammation and offer other brain protective benefits. Research is underway to see if such drugs could be used to treat or prevent Alzheimer’s and other forms of dementia. Early results were disappointing, as the drugs failed to slow disease progression in people with early-stage Alzheimer’s, but further research will be conducted.
Lifestyle interventions offer cognitive benefits: I wrote last year about the U.S. Pointer trial findings and how structured lifestyle interventions including diet, exercise, and cognitive training led to improved cognition. At the December conference, more results were shared, including small benefits for those with sleep apnea, which has been linked to an increased dementia risk. Also shared at the conference was research on the benefits of receiving the shingles and TB vaccines.
Updates on current Alzheimer’s treatments: While there have been controversies about lecanemab and donanemab, the latest research shows that they do help slow the progression of the disease, even after treatment is stopped. This is an important finding as these treatments raise the risk of serious side effects such as brain bleeds. The next generation of anti-amyloid treatments are being developed and tested, with a focus on reducing side effects while offering meaningful benefits.
These findings demonstrate the hard work being conducted by Alzheimer’s researchers to improve testing and develop more effective treatments with fewer side effects. The cognitive benefits of lifestyle changes should not be overlooked, as research continues to find positive impacts in this area.
I’ve been fortunate to be part of the AlzAuthors community over the years and had the opportunity to share The Memories Project blog, my personal essay collection The Reluctant Caregiver, and more recently, poetry. I look forward to this new chapter and supporting the mission of sharing the work of authors writing about the Alzheimer’s and dementia experience. In addition to showcasing books, AlzAuthors hosted a podcast and a film festival.
AlzAuthors celebrated its 10th anniversary in 2025. I’m grateful to all of the volunteers who donated their time and talent to build and grow such a wonderful organization.
For those who have contributed to or have used AlzAuthors as a resource, the website and its helpful content will remain available. Stay tuned as new opportunities to share and connect become available.
Each dementia case is unique. There are many forms of dementia, each which affect different parts of the brain and may cause different cognitive symptoms. As a caregiver, one area that can be difficult to navigate is how much help a loved one with dementia needs. That’s in part because progression isn’t linear and there may be good and bad days that can create an emotional minefield for family members. It can be heartbreaking to see a loved one’s reaction when they realize they are losing their independence even when family caregivers have their best interest at heart. On the other end of the spectrum, family members can feel tremendous guilt if an incident happens because they weren’t monitoring their loved one enough.
Dr. Elaine Eshbaugh had a good post on this topic on her blog, When Dementia Knocks. As she points out, there’s no definitive guide or course of action to follow. The best advice is simply to pay attention, try to include your loved ones with dementia in daily activities as long as it’s having a positive impact, and don’t beat yourself up because you did too much or too little on any given day. As a caregiver, the most important moments to step in are for safety reasons. If your loved one loves to cook but it’s not safe for them to cook alone, maybe you have a night where you cook together. If your loved one can no longer safely drive, consider taking them for scenic drives or on a drive to a favorite spot.
It can be a challenge to honor a loved one’s independence while at the same time protecting them from harm. So much of dementia caregiving becomes ad-libbing your way through each day. As Dr. Eshbaugh says in her blog post: “You won’t always get it right, and that’s okay.”
Each year I consider a wide range of useful gifts for caregivers, everything from books to high-tech gadgets. No matter how amazing a gift is, I’ll always believe that personal time away from caregiving duties is the most precious gift of all. Respite comes in many forms, and can be as simple as an afternoon off to engage in self-care. For the family caregivers on your gift list this holiday season, think about how you can give them a bit of personal time back.
The good news is that in a year in which many are struggling financially, giving someone else time need not cost money, but only sacrificing some of your time. Offer to sit with a loved one to free up time for the caregiver. Volunteer to assist with a time-consuming task, like grocery shopping or making meals. Cleaning the house or tackling household repairs are other ways to give the gift of time.
Here are some other thoughtful gift ideas for caregivers:
Joe & Bella: Dressing can become a time-consuming challenge for those with dementia. I love the line of adaptive clothing from Joe & Bella, which looks nice and includes clever additions, like magnetic closures and CareZips to save time and reduce frustration.
Happy Healthy Caregiver: Check out the digital gifts, such as a self-care journal and for something with a personal touch, create a Caregiver Jar filled with affirming and inspiring quotes.
Alzheimer’s Association Gift Guide: Thoughtful gift ideas for caregivers and people living with dementia. I like that the guide offers suggestions at different stages of the disease.
Of course, I will take a moment to recommend my book. Beginning Monday Dec. 8 through Jan. 1, Smashwords is running the 2025 End of Year Sale. You can get the e-book version of my award-winning personal essay collection, The Reluctant Caregiver, for half-off.
A recent post on the Alzheimer’s Association website offers a message for those who may feel like they are struggling as a dementia caregiver.
Gemma O’Donnell, whose father has Alzheimer’s, is also a registered nurse, educator, researcher, and dementia care advocate. The disease has had an impact on her life both personally and professionally, O’Donnell said.
“The heart of caregiving is not perfection, but presence. What has stayed with me is how much the small moments matter—sharing a laugh, holding a hand, or simply sitting together when words are no longer possible.”
She shared another tip for a common issue that dementia caregivers experience, and one that my mother struggled with in caring for my father. “Over time, I learned that joining someone in their reality brings far more peace and connection,” O’Donnell said.
I also loved her quote encouraging caregivers to seek support: “Asking for help is an act of love, not failure.” I totally agree and that is why I created Respite Care Share. Don’t ignore the signs of caregiver burnout.
Today is World Alzheimer’s Day. This year will mark 14 years since my father’s death from complications of this terrible disease. There has been a great deal of promising research and the development of a few medications that may help slow the progress of the disease in some people, but pinpointing the exact cause of Alzheimer’s and a cure remain elusive.
While I appreciate all of the tireless work of researchers, scientists, and the Alzheimer’s advocacy organizations, I’m not that hopeful that a cure or even an effective treatment will be discovered in my lifetime. More likely, the treatments that are on the market now may be improved upon, delaying disease progression and preserving cognitive functioning for longer. Now that I’m in my 50s, with one copy of the APOE4 gene and the disease prolific on both sides of my family tree, I have to be realistic about my risk and do what I can to reduce that risk and plan financially and logistically for any future care needs.
I would love nothing more than to be proven wrong.
Haircuts are a routine personal care task that many of us take for granted. Some of us may even enjoy a visit to the hair salon. But for those with dementia, what was once part of the grooming care routine may become a challenge. In this blog post from When Dementia Knocks, Elaine M. Eshbaugh, PhD explains why a visit to the barber shop or salon can be uncomfortable for those with dementia.
She also offers tips for family caregivers on how to make a haircut a less stressful event for all involved.
I love the idea mentioned in the blog of offering dementia training to barber shops and salons. I hope such training expands because with just a bit of awareness, we can all better accommodate those with dementia in our daily routine.
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The Memories Project 