This is such important information for family caregivers. To put it bluntly, a fall for a frail loved one can signal the beginning of the end. Both my mother and father experienced falls as their health situations declined. Learn more and tips on preventing falls from Kay Bransford.
via Falls are Game Changers for Older Adults
Those who have faced Alzheimer’s or other dementias in their families know that it can be a dreadful roller coaster ride, and while in the early stages there may be quite a few “good” days, they often seem overshadowed by the “bad” days.
One man in the UK who has early-onset Alzheimer’s is hoping to send a different, more hopeful message. He is using his beloved hobby of cycling to spread the message across the country.
Peter Berry was diagnosed with early-onset Alzheimer’s at 50, after 3 long years of trying to obtain a diagnosis for his increasingly troubling symptoms. He sank into a deep depression for about a year, but when he emerged, he was determined to help others who find themselves in a similar situation. Through a video series and on social media, Berry shares his experience and what has worked for him, including a healthy diet, regular sleep and long bike rides.
While he’s under no illusion as to what Alzheimer’s ultimately holds in store, he stresses the importance of having a positive outlook: “People who suffer from the disease know the journey and path we’re taking. We all know the end product of this disease. But it’s all about what you do in between. It is not about what I can’t do, but what I can do.”
Watch his inspiring story, produced by Being Patient, and share with others.
I am so proud to be part of the AlzAuthors group. I can’t believe the group of Alzheimer’s and dementia writers is marking its 4th anniversary! It has been so rewarding to see this group expand over the years and I applaud the hard work of the core founders who have shared our books to caregivers around the world.
If you haven’t visited the website in awhile, check out the redesign. I love it!
To mark the occasion, AlzAuthors is hosting a book sale and raffle. Choose from 19 free and discounted books. My award-winning collection of personal essays, The Reluctant Caregiver, is just 99 cents during the promotion, which runs through June 27th. (Note: Amazon is still processing the discounted rate as of Friday morning, but you can use this link to buy the book for 99 cents at other major digital book retailers right now.)
You can also enter a raffle to win free books from select AlzAuthors contributors.
Please spread the word to fellow dementia caregivers and thank you for your support!
Respite care is an issue I care about passionately, prompting me to launch Respite Care Share a few years ago. This guide offers an excellent overview about what respite care benefits Medicare covers.
When it comes to our loved ones that may be living with health conditions that hinder their ability to perform everyday functions, we want to provide them with the best care. Statistics show that often, it is a family member that takes on this role as a full-time caregiver. Being a caregiver is one of […]
via Medicare and Respite Care – What Does it Cover? — The Imperfect Caregiver
I’m excited to share my latest book, CBD for Caregivers. This brief but informative e-book will shed light on what is one of the top health trends of 2019: CBD (cannabidiol.) Hemp-derived CBD is being soil in oil-based tinctures, edibles, topicals and infused into tea and coffee. How can this potentially beneficial supplement help caregivers?
I look beyond the hype and take you on the journey of an average middle-aged woman with no marijuana experience who explores CBD with an open mind and a healthy dose of skepticism. What I found is that CBD holds promise as a healthier way to deal with stress and pain. There are no miracle drugs and some of the more fantastical claims are indeed bunk. But I would also challenge those who argue that positive CBD claims are all just a giant placebo effect.
In addition to an overview of what CBD is and how it may help caregivers, the e-book contains a roundup of my CBD product reviews that are a popular feature on my website, CBDforCaregivers.com.
For my loyal blog followers, you can download CBD for Caregivers for free for a limited time. I would kindly ask that you leave a review at your favorite digital retailer if you grab a free copy. The book is available at the following digital book retailers. There was a hiccup with Amazon but hopefully it will be available via Kindle soon as well.
I look forward to hearing your feedback on the book and CBD in general. If you’ve tried it, I’d love to hear your opinion.
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The complex emotional toll of Alzheimer’s has been in the news the past week. The Washington Post wrote an article about B. Smith, the model, restaurateur and lifestyle guru who has early-onset Alzheimer’s and how her husband has formed a relationship with another woman. B. Smith’s loyal fans were not happy about this development.
Dan Gasby tried to defend himself amidst withering criticism, saying in interviews that B. Smith told him to “go on” after her diagnosis in 2014. He says he’s a better caregiver to his wife now that he’s happier.
Gasby has at least one high-profile supporter: Patti Davis, daughter of Ronald Reagan. In her essay, titled, Alzheimer’s is a cruel thief. Don’t blame caregivers for still finding joy, she reflects upon the emotional devastation an Alzheimer’s diagnosis can bring and what that can do to a couple. She encourages the public to be more sympathetic to those in Gasby’s position.
The issue is at its heart an emotional gut-punch so the fact that it inspires heated opinions is not surprising. What I’ve learned over the years as a family caregiver for someone with dementia is that I wouldn’t want someone to judge my choices and so I try to refrain from judging others, as long as no harm is being done. While I may not make the same choice as Gasby has made, I cannot rule it out completely either. Those who are outraged on social media would better use their energy volunteering at a memory care center or arranging respite care for a caregiver in their life.
As Patti Davis says, Alzheimer’s is a cruel thief. How much should we allow the disease to steal from caregivers?
This blog post by Bobbi Carducci is a good reminder on how dementia caregivers must learn a new way to connect and communicate with their loved one, as verbal skills begin to decline. She offers good tips on how you can manage some of the most difficult dementia behaviors.
Often the behavior of someone with dementia is so changeable and unpredictable it’s almost impossible to figure out what is going on, leaving the caregiver confused and frustrated. Why is your spouse confused with you and so alert when someone comes to visit? Why does your mother, who is usually calm and agreeable, suddenly become […]
via 4 Disturbing Dementia Behaviors and How You Can Go From Frustration to Connection — The Imperfect Caregiver