Tag Archives: alzheimer’s advocacy

The Memories Project receives recognition for Alzheimer’s advocacy


Ezvid Wiki

The Memories Project blog is now in its ninth year, having started it shortly after my father’s death in 2011. Over the years, the blog has been featured on NPR and other outlets and has grown to be an advocacy platform for those with dementia and their caregivers.

The latest recognition comes in the form of a video, featured on Ezvid Wiki. The Memories Project is featured along with six other worthy organizations in a video titled, “7 Organizations Dedicated To Addressing Alzheimer’s.”

You can watch the video below:

Founded in 2011, Ezvid Wiki holds the title of world’s first video wiki. Its YouTube channel has over 500,000 subscribers, with nearly 300 million views since its founding.

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25 years of Alzheimer’s advocacy in America

The Alzheimer’s Association Advocacy Forum will host its 25th national conference this year in Washington, D.C. from April 22-24. Check out this timeline of Alzheimer’s advocacy over the last quarter of a century. So many people have come together and broadened awareness of this terrible disease over the last 25 years. Certainly I know most advocates would hope we would be further along with treatment options or even, daresay, a cure, but awareness has grown greatly. Unfortunately, as Alzheimer’s cases have grown in numbers, the U.S. and the world have had to take notice and take action.


I hope to get to attend this year. For those on a budget, registration fees are being waived in honor of the 25th anniversary. You can find out more about the event and the agenda details on the registration page.

Sometimes, caregivers and family members can feel so alone, so isolated in their family’s struggle with Alzheimer’s. Meeting others who share similar experiences can be a moving, yet rewarding experience.

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The personal side of the Alzheimer’s awareness movement

The Alzheimer’s Association Advocacy Forum is taking place this week in Washington, D.C. For those attending and promoting Alzheimer’s awareness, a big thank you. Alzheimer’s is quickly becoming a national health crisis, and we must come together as a nation to address it.

For most of us, the battle against Alzheimer’s is very personal. For me, it’s the reason why I started The Memories Project. My dad was not a celebrity or a hometown hero. He was just an average guy.

But he was my father, and he did not deserve to suffer from Alzheimer’s. No one deserves to suffer from this terrible disease.

I can’t be in the nation’s capital to be a part of the forum, but if I had the opportunity to share a personal memory of how our family was touched by Alzheimer’s, I would share this snapshot in time, my last visit home when my father still lived there:

My dad was restless and paced the living room, while trying to get the zipper on his jacket to work. Suddenly, he turned around and looked straight at my mom, who was sitting on the couch next to me. He asked with a tone of distress, “Where’s Jane?”

My mom is Jane. My parents were married for 40 years.

My mom’s face crumpled internally, the words striking her skin as painfully as physical blows. She answered in an even tone, “I’m right here.”

There were many other painful memories that Alzheimer’s created for our family, but this one stands out starkly in my mind and makes my heart hurt. It was difficult to know who to have more sympathy for, my dad suffering from advanced memory loss or my mom forced to deal with the fact that her partner of 40 years could no longer remember who she was.

This is why I am an advocate for Alzheimer’s Awareness.

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