Tag Archives: alzheimer’s awareness

Showing appreciation for the dementia caregiver community

A big thank you to Neighbor Nancy and Ann Ahnemouse for nominating me for a Very Inspiring Blogger Award. Nancy I have had previous contact with but I don’t believe I have with Ann, so it was a pleasant surprise to hear she had been following my blog for quite some time. It is yet another reminder of the wonderful community of caregivers waiting to be found in the blogosphere.

The rules are simple:

Thank and link to the amazing person who nominated you.
List the rules and display the award.
Share seven facts about yourself.
Nominate 15 other amazing blogs and comment on their posts to let them know they have been nominated.
Proudly display the award logo on your blog and follow the blogger who nominated you.

7 facts about me:
– I have Celiac Disease, and have been on a gluten-free diet since 2005.
– I’m a cat lover.
– I like my coffee black, no sugar.
– I’m a bourbon aficionado.
– I was born and raised in California, but have no interest in returning.
– A big Greek salad is one of my favorite meals.
– Stephen King is one of my favorite authors.

Bloggers you should follow (For sake of time, I have less than 15 but will try to add more soon!)

My Neighbor Miss D Nancy is a devoted elder advocate, and has been the driving force in helping a neighbor in her building who has dementia return to her home after she suffered abuse from family members.
Ann Ahnemouse As I said, this is a new blog for me, but she’s been posting for a few years! Ann writes about her journey with her partner, and how his dementia impacts their lives.
terry1954 I’ve been following Terry’s blog for quite a while. Terry was the sole family caregiver of her brother, who had MSA. He died this year, and while the end of his suffering was indeed a blessing, there is a giant hole left behind when our loved ones depart, no matter the circumstances. Terry is a fearless writer who shares her thoughts on many topics.
Alzheimer’s Speaks: Lori La Bey is a tireless advocate for caregivers. She has a radio show as well!
SaveEveryStep: You should subscribe to this blog for the weekly “Joe’s Letter” post alone. The letters are from the blogger’s uncle from WWII and they are so fascinating! If you love nostalgia, you’ll love her blog, as she often writes about the fashions and music from her childhood and adolescence. But Helen Spencer founded the website, SaveEveryStep.com in memory of her mother. She is giving back to the world by allowing you to capture your own family’s memories and preserve them for free, a useful service to anyone, but especially for families touched by Alzheimer’s and dementia.
Hot Dogs and Marmalade: This blogger’s mother has Alzheimer’s and she writes both poignant and humorous accounts of her family’s life. You’ll have to read her blog to find out the reason for the unusual title of her blog!
My Demented Mom: Kathy Ritchie doesn’t sugarcoat one bit of her experiences caring for her mom, who has frontotemporal dementia. Kathy is in her 30s and is now a mother herself. Her blog is breathtaking in both its agony and in the way she expresses her love and dedication to her mother.
Quilt of Missing Memories: Talk about a family devastated by dementia. Jacquelyn’s father, mother and husband all have a form of dementia. Her father has passed, and late last year, so did Jacquelyn’s husband. I appreciate this blog because of the simple and joyous photos and short poems that are posted on a regular basis.
Lori’s Lane While not a caregiving blog in particular, the blogger did find herself in that role when her husband suffered a serious accident on the job. I love this blog for the insightful posts and the uplifting quote every Friday.

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Walking for Dad on The Longest Day

This year I actually have the opportunity to participate in the Alzheimer’s Association campaign, The Longest Day. Since this is the day it stays light the longest, today is the perfect opportunity to shine a light on Alzheimer’s awareness from dawn to dusk. Last year I was at work so I couldn’t fully participate, but I had no excuses this year!

Walking the Beltline in Atlanta for Dad on The Longest Day 2013.

Walking the Beltline in Atlanta for Dad on The Longest Day 2013.


People do all sorts of things to honor their loved ones for The Longest Day campaign. People hike, run, swim, ride a bike, just anything to get out there and spread awareness. I chose to walk because Dad loved to take long walks and I do too! I decided to walk the Beltline, which is an exciting project here in Atlanta that is repurposing the long abandoned railroad tracks that still exist around the city and converting them into a walk/run/cycling trail that links up many intown neighborhoods. I was skeptical about the project at first I have to admit, but now that I have experienced one of the first phases of the project, I feel like it’s coming along nicely.

Piper the Beltline Kitty came out to greet me on my walk for Dad!

Piper the Beltline Kitty came out to greet me on my walk for Dad!

Today I walked the Eastside Trail from Piedmont Park in Midtown to Inman Park. Driving that route is almost a five mile trek. But thanks to the Beltline, you can walk there in half that distance. I made it to my destination in about an hour and am writing up this blog post at a neighborhood coffee shop. I’m going to keep spreading Alzheimer’s awareness throughout the day by staying active on social media and doing more walking!

I would love to hear how others are honoring their loved ones and spreading Alzheimer’s Awareness on The Longest Day. To follow the action on Twitter, use the hashtag #thelongestday.

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25 years of Alzheimer’s advocacy in America

The Alzheimer’s Association Advocacy Forum will host its 25th national conference this year in Washington, D.C. from April 22-24. Check out this timeline of Alzheimer’s advocacy over the last quarter of a century. So many people have come together and broadened awareness of this terrible disease over the last 25 years. Certainly I know most advocates would hope we would be further along with treatment options or even, daresay, a cure, but awareness has grown greatly. Unfortunately, as Alzheimer’s cases have grown in numbers, the U.S. and the world have had to take notice and take action.

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I hope to get to attend this year. For those on a budget, registration fees are being waived in honor of the 25th anniversary. You can find out more about the event and the agenda details on the registration page.

Sometimes, caregivers and family members can feel so alone, so isolated in their family’s struggle with Alzheimer’s. Meeting others who share similar experiences can be a moving, yet rewarding experience.

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Celebrities raising Alzheimer’s awareness

Comedian and actor Seth Rogen is an Alzheimer’s Champion. He started a fundraising event called “Hilarity for Charity” and he has raised over $30,000 so far. He’s auctioning off a star-autographed ukulele and the bidding ends January 11th. Find out more about his fundraising event at CrowdRise.

When stars get involved in causes, it can raise awareness greatly. With Alzheimer’s and dementia so common nowadays, I hope more celebrities and notables will step up and join the fight.

As Seth Rogen says on his fundraising page about Alzheimer’s: “It’s robbing people of their ability to be humans.”

I couldn’t agree more.

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