Tag Archives: opioids

CDC weighing new opioid prescribing guidelines

Anyone who is dealing with chronic pain or caring for someone with a chronic pain condition being treated with opioids will want to pay close attention to the Centers for Disease Control’s updated opioid prescribing guidelines for doctors.

The public comment period has ended and a draft of the guidelines has been completed. The CDC’s final recommendations will follow.

I all too well remember the 2016 guidelines. Doctors were warned about the upcoming changes in 2015, the year my mother died, and those guidelines (along with the doctors’ gross misinterpretation of the guidelines) caused my mother to die an agonizing death. Others sadly experienced a similar fate. Some people who had been on a successful maintenance regimen of opioids found themselves suddenly cut off by skittish doctors. Some people turned to the illicit drug market. Others committed suicide because they could no longer endure the pain.

NPR reviewed the draft document of the revised CDC guidelines. Officials blamed doctors for misapplying the CDC’s 2016 guidelines, saying it was supposed to be a “roadmap” not a “rigid set of rules.” But it’s difficult to put all the blame on doctors across the county who apparently were in fear of losing their medical license if they didn’t follow the CDC’s guidance. Clearly something or someone made them fearful enough to go against their medical training and harm their patients.

America’s overdose crisis prompted the stricter prescribing guidelines in 2016, and states in which opioid overdoses were epidemic passed laws to further restrict opioid distribution. This knee-jerk reaction, after these same states welcomed a flood of opioids from Big Pharma for years, had an unfortunate outcome for those who did use opioids responsibly to treat chronic pain conditions in which no other medications were effective.

My mother had intractable cancer pain in the last several months of her life. The CDC guidelines were not supposed to be implemented for those with cancer. But my mother’s doctor didn’t believer the cancer had returned and that she was dying. She believed my mother had become dependent upon the drugs and started limiting her prescription until she finally let my mother’s opioid prescription run out while the doctor was on vacation. My mother suffered mightily because of the doctor’s misinterpretation and fear of the CDC guidelines.

The 2022 guidelines make some improvements, according to pain specialists interviewed by NPR. There is no specific limits on the dose and duration of an opioid prescription. Clinicians will be encouraged to use their own judgment in deciding what is a safe and effective dose for each patient. And the CDC will stress more clearly that the guidelines are not “intended to be applied as inflexible standards of care” or as “law, regulation or policy that dictates clinical practice.”

While the new guidelines still discourage opioids as a first-line therapy for common acute pain conditions and for chronic pain conditions, it does acknowledge that opioids can play a role in chronic pain treatment, especially if other approaches have been tried.

If you or a loved one is running into issues of doctors not willing to manage your pain properly, keep pushing. Find another care provider. No one should have to die in agony because of bureaucratic guidelines. As NPR points out, the 2016 prescribing guidelines didn’t have the intended effect of reducing opioid overdoses. All of that suffering, all for nothing.

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How America’s opioid crisis punishes those with chronic pain

There is a new miniseries on Hulu called “Dopesick” that explores the origins of the opioid epidemic that continues to devastate America. The actions of the Sackler family and Purdue Pharma in the marketing of their supposed “miraculous” pain medication Oxycontin, which they claimed was non-addictive, is generating a great deal of outrage on social media. Legal wrangling over a proposed settlement continues to play out in court.

There is another group who is expressing outrage: those who suffer from chronic pain conditions. I learned a lot about how brutal and devastating intractable pain can be by watching my mother die of cancer. The last several months of her life were torture because new laws designed to curb opioid usage made it difficult for my mother to procure the level of pain medication she needed. While health experts are quick to point out that the laws weren’t meant to target terminal cancer patients, my mother is proof that in fact they did. First was the burden of having to come into the office and see the doctor instead of being able to request a refill over the phone. Then there was the reduction in the amount prescribed and finally a battle in getting an opioid prescription filled at all. Her doctor mistakenly thought my mother wasn’t dying, but just addicted to opioids. When I tried to follow up, I was also treated with doubt and suspicion. The final battle came with trying to get my mother enrolled in hospice, so she could get access to the morphine that she so desperately needed. My mother only received morphine for about two weeks before she died, and I never felt like I was able to get her pain under control because it had been left unchecked for so long.

Unfortunately the addiction epidemic unleashed by Oxycontin has impacted those who actually need such pain medication to function. Beyond terminal conditions like cancer, there are incurable conditions that cause excruciating pain. Ehlers-Danlos syndromes (EDS) is one such condition, which affects the joints and can cause nerve pain and dislocations among other excruciating symptoms. These victims of the opioid epidemic are often forgotten or made to feel like they are addicts for wanting access to effective treatment. They get told to try acupuncture or yoga, or change their diet, or try cannabis, etc. Most of these people have tried a variety of treatments and are frustrated that because of the addiction stigma, they are being denied access to what was the only treatment that worked for them.

Because of my mother’s experience with pain, I have compassion for and am not dismissive of those who are living with conditions that cause extreme pain. The medical community needs to do better to provide effective pain relief for those who truly need it.

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