Tag Archives: writing

Home renovation and caregiving both require leaving one’s comfort zone

To kick off the year I had to repipe my home, something I had been dreading and putting off for several years. I had a lot of old galvanized pipes that had been there well before I purchased the property in 2005. For years I had been patching leaks; sometimes the would rust/corrode over which bought me a bit more time but made me recoil at the idea of the water quality coming through these ancient pipes.

It was one of those home improvement projects that hung over me like a dark cloud. I’m not a procrastinator, quite the opposite, but the cost of an entire home repipe is astronomical. It’s one of those projects you hope to put off until you get some kind of windfall, but let’s face it, that rarely happens in life. Same thing with caregiving situations; a medical crisis doesn’t wait until you have a nice rainy day fund.

Even though home improvement and caregiving may seem to have little in common, I did find that some of my prior caregiving skills and experience came in handy. Initially I had a similar sense of intense dread about this project as I did about caregiving, but once I’m committed, I’m all in.

Researching topics I know little about gives me some sense of control I crave in these types of situations. My researching abilities are my strength and organizing price quotes, materials, and methods for my plumbing project reminded me of how I researched care options for my parents.

Flexibility is not one of my strengths but required in both home improvement and caregiving situations. There is always a level of uncertainty involved and one has to steel themselves for unexpected outcomes. Admittedly, I thrive on order and structure; I’m a deliberate decision maker and don’t like making spur of the moment decisions. But I find that I’m able to adapt when necessary. I learned to dread the knock on my bedroom door when the plumbers came across the unexpected and needed my input, such as tile behind the shower wall, and an ancient cast iron tub inside the tub I’d been using for the past 20+ years! But I pushed through, just as I did with making caregiving decisions.

Another area where I found similarity between home improvement and caregiving is having to rely upon other’s opinions and advice. As an independent person, this is a challenge for me to be “needy” even though I was certainly paying a high price tag for plumbing expertise. With caregiving, I felt a similar helplessness, relying upon the medical expertise of strangers who I hoped had the best interests of my parents in mind. I will say I gained an entirely new appreciation for plumbers and the technical expertise they have.

Co-existing with a house full of strangers and the constant noise that ensued was another challenge. I work remotely so there was a high level of disruption for a few days. I was concerned about how my senior dog Murphy would do, as he’s not fond of strangers in the house. Would he bark nonstop for hours on end? I made sure I had my noise-canceling headphones fully charged. Funny enough, Murphy slept through all of the drilling and hammering and only barked when he heard people on the stairs. I also was concerned about the cats escaping outside, as the plumbers at one point had to access the room I was keeping them enclosed in but fortunately they stayed put. Ironically, I got even more work done than normal because I didn’t want to be in the plumbers’ way so I stayed glued to my desk.

Once the repiping was done, I had to bring in another service to fix the tile damage. By the time I got quotes and service scheduled, I had been staring at my nice new shower for over two weeks but unable to use it. Then there was a missing part of the shower trim that I had to order and have the plumbers come back and install. In total, I went almost an entire month without a proper shower. (At least I had a nice new sink to do sink baths. And also good thing it’s winter and I live alone.) After the shower tile renovation was completed, I had to repaint a bit, add waterproofing, and re-do the floor tile. In fact, I just finished today one of the final steps, about six weeks after the project got started.

Yes, I finally had a bath! Celebrate the small wins, just like in caregiving.

I’m relieved to have nice, new plumbing and everything is working well, but after all of the effort and astronomical cost, it does feel a bit anticlimactic. Caregiving can feel like that sometimes; my mother slowly recovered from cancer surgery and then one day she was independently living again but there wasn’t a definitive winning moment. Life just moves on, one way or another.

A new toilet and sink aren’t sexy, but it does make one appreciate the basic necessities of domestic life more.

Finally, home renovation and caregiving have another thing in common: they are both expensive! I half-joke that I should start a GoFundMe but instead, I will link to my books, if you’d like to contribute to my unofficial plumbing expense fundraiser: The Reluctant Caregiver | Slow Dog.

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Accessible writing for those with dementia can benefit us all

Dementia can make many daily tasks difficult, if not impossible. One of those tasks is reading. My father was an avid reader throughout his life so as his dementia progressed, his one true hobby and passion in life was rudely stolen from him.

Reading skills are necessary to navigate daily life beyond reading for pleasure. Being able to interpret signs, recipes, instruction manuals, etc. all take various levels of reading comprehension. Is there a way to write that can make it easier for those with dementia to comprehend?

Innovations in Dementia has released new guidelines on accessible writing for people with dementia. It’s an insightful and useful manual offering real world examples and explaining the whys behind the recommendations. It’s written with a good dose of humor, which is hard to do with a style guide! Everything from font choice and size to page layout and navigation and word choice are covered in the manual.

Researchers found through surveys that many of the recommendations on how to make writing clearer for those with dementia were also useful for those without dementia. The guide points out some similarities in reading challenges for those with dementia and those with dyslexia. Many of us find ourselves increasingly distracted and overwhelmed by the information flooding our minds on a daily basis. If you are familiar with the concept of “smart brevity” that powers the concise writing style used by Axios, you may see some similarities with the clear and direct writing style recommended in the writing for those with dementia guide.

Recently I read a book, Writing for Busy Readers, that I found insightful in how we can all improve our written communication to express ourselves more clearly and be understood by others. From corporate boardrooms to schools, there are opportunities each day to express ourselves more effectively.

Communicating in a way that is more accessible to those with dementia could benefit us all.

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Consider sharing your caregiving story

I had a great time at the Atlanta Writers Conference Book Fair. It’s been awhile since I’ve attended a conference in-person. It’s always inspiring to see so much creativity on display.

To that point, I met several caregivers at the Book Fair who shared their personal caregiving stories with me. If you are on the fence about writing about your caregiving experience, I would encourage you to try, even if it’s in a personal journal and not for public consumption. Doing so can be a cathartic experience. You may find that you do have lessons to share that would benefit other caregivers. If so, there are many self-publishing platforms available, in addition to the traditional publishing route.

Understandably, while you are an active caregiver, you likely will not have time to work on a book project. I scribbled down notes, quotes, scenes, anything that I thought I might want to revisit in written form later. Sometimes having a bit of distance can help in framing an experience in a balanced way, but capturing those visceral images in real-time was important for me. I published The Reluctant Caregiver 2 years after my mother’s death and 6 years after my father’s death. Of course if you’ve been following my blog from the beginning you know I began The Memories Project within weeks after my father’s death. At the time I thought I would mainly be writing about my father’s journey with Alzheimer’s but then my mother fell ill. By the end of my caregiving journey with my parents, I had a variety of experiences and lessons to share.

No doubt you will too.

[To give you inspiration, check out the recording of Poetry for the Dementia Journey, a poetry reading event hosted by AlzAuthors. At about the 37-minute mark, you can hear a poem I shared about my father.]

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Applying writing wisdom to life as a caregiver

I attended the Atlanta Writers Conference this weekend and learned interesting tidbits about the publishing industry and enjoyed hearing about other writer’s projects.

Raymond L. Atkins, an author and guest speaker at the conference, told about how he handled a situation where the publisher selected a cover image that he felt didn’t fit the plot of his novel. The publishing house wanted to market the book as a mystery, when the author knew his book was a romance.

Sorrow_Wood_FRONT_sample2

The chosen cover featured an ominous barn. The author was puzzled because there was no such building in his book.

The publisher said they knew that, and wanted him to add a barn to the story.

The author didn’t really want to, but according to his signed contract, the matter was out of his hands and at the discretion of the publisher. So he added the darn barn.

Two pages later, that barn burned down.

To me, this was a great example of “when life hands you lemons, make lemonade.”

As caregivers, we may find ourselves following advice we question but feel powerless to challenge. But we always have power over our own actions and our attitude.

Don’t be afraid to burn barns, figuratively speaking, of course!

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Signs you cannot ignore

On Saturday, I went to pick up my writing award. It was a nice presentation. Each of the awards is named after a famous author, and the contest organizers revealed what each author said about the winning entries. Rick Bragg said about my essay, “Strong, really strong. Made me choke up.”

Hopefully that validation will help motivate me to finish the book that I’ve been working on over the last few years.

Joy writing award

Just before I left for the ceremony, Mom’s burial flag arrived in the mail. (Even though we had her cremated, she was entitled to a flag for her Navy service and I thought it would be nice to have in a memorial display for her.) I had to take that as a sign that she was watching the day’s events, ever the proud Mom.

And if Mom was watching from the other side, so was Dad, as she wouldn’t have given him a choice! It is a bit odd to celebrate a piece about my dad’s battle with Alzheimer’s, but I know Dad would have been proud of my award too, as he secretly wanted to be a writer, and loved to read. I think he would have forgiven me for making him the subject matter.

Monday marked the four-month anniversary of my mother’s death. While life has moved on and I with it, I still find myself hitting those potholes filled with “I should have done this” or I could have done xyz better” thoughts when it comes to my mom’s care.

I know the road will smooth out eventually. In the meantime, I’ll keep looking for signs and keep moving forward.

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Today’s lesson: Don’t give up

I have some exciting news to share: I have been chosen by the Atlanta Writers Club as the 2015 recipient of the Rick Bragg Prize for Nonfiction.

AWC 2015 contest winners

The piece that I submitted, “Greetings from the Nursing Home,” was an essay that I have kicked around for a long time. I began the piece after my first visit with Dad at the nursing home. That was back in 2011.

Since then, the essay has gone through countless revisions, and has been critiqued multiple times. I have submitted the piece numerous times to contests and literary journals for publication.

Each time, it was rejected.

As any writer knows, rejection is part of the process. I kept plugging away. I’ve written other pieces that have been published, I’ve self-published essays on various online platforms, but this one essay was special to me. While finishing my book is my number one writing goal, close behind was getting this essay recognized.

I learned of the honor as I was standing in the middle of what was my parents’ condo. The living room furniture had just been removed, and donated to charity. I was standing in the empty room, considering the new possibilities, when my phone buzzed and I literally jumped for joy after opening the email with the “Congratulations” subject line.

I hope this will inspire all of you, that however you express your caregiving story, whether it is through the arts, sports, spiritually or any other form of expression, don’t give up hope. Your message is being heard, and it will find a proper home.

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