Category Archives: Awareness & Activism

Planning for the Future With Elders Facing Alzheimer’s or Dementia

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Alzheimer’s and other dementias can creep into a family’s life until loved ones find themselves overwhelmed and unprepared for the severity of the disease. That’s why having a care plan is so crucial. The guest post from Mile High Estate Planning offers key areas that need to be addressed.

It can be difficult to face conversations with your loved ones after a diagnosis of Alzheimer’s or dementia. However, interaction with others is important for helping them retain important social and cognitive skills. And, there are some conversations that will help you care for elders facing a dementia diagnosis.

To get you started, we have put together a few questions that can help get important conversations started. We have also included some tips for effectively communicating with people living with dementia or Alzheimer’s disease.

Planning for the Future

No matter how bleak that future may look, you still must plan for it. Consulting an attorney who specializes in Elder Law can help you decide what questions are most relevant to your family’s situation. Here are some general guidelines.

Have they completed all of the important and necessary legal documents? Talk to your loved ones about updating and finalizing wills, estates, and trusts.

Make sure that their finances are in order. This might be a good time to find out who should make financial decisions once the elder is no longer able to do it themselves. Talk to a financial planner about the best way to ensure your loved one’s wishes for their accounts are honored.

Ask what type and level of care the person wants to have as their disease progresses. Do they want to go into a nursing facility or stay at home? Is there anything that would signal whether treatments should continue or end?

Is there someone they would like to make decisions on their behalf if or when they are unable to? Be open to the idea that this person may not be you, and don’t belittle or second guess their decision.

Remembering A Life Well Lived

Now is the time to start a conversation about your loved one’s life. Ask questions to stimulate memories of special events, accomplishments, favorite places, anything they remember as important or special.

Fortunately, your conversations don’t have to focus only on the end of their life. The beginning and middle are important parts too, and should be remembered, discussed, and cherished as long as possible.

If your loved one keeps bringing up a particular hobby or interest from their past, make sure that is part of their future too. Keeping plants in the room can satisfy a love of gardening and a birdfeeder outside their window can attract wildlife for an animal or nature lover.

Keeping Lines of Communication Open

Unfortunately, dementia can make even basic communication difficult as it progresses. Your loved one may find it hard to come up with the right words or names for objects and people. Their logic may seem off, and conversations can start to flow in an unpredictable manner. Some people may revert to a native language from their younger days.

These are all normal effects of dementia and are nothing to be ashamed of. Since it is so important to keep people living with dementia and Alzheimer’s disease engaged, do not let these challenges dissuade you. Isolation can quickly lead to depression. Instead, follow these tips for successful communication.

Don’t assume you know what the person is capable of. Everyone will be affected by dementia in a different way. Instead, ask them what style or methods of communication are most comfortable for them. Maybe they prefer talking in person to phone calls.

Dementia slows response time, so don’t rush or force a conversation. Give the other person plenty of time to think about what you said and come up with a response on their own. This gives them the opportunity to share their thoughts, feelings, and ideas without interference.

As dementia progresses, your loved one will have more trouble coming up with words. Try asking simple questions that can be answered with a yes or no response. Visual cues or written notes can be very helpful in getting ideas across.

Since they will likely have trouble concentrating, try to eliminate background noise. Also, don’t overwhelm them; ask one question at a time so they can focus on what you are saying.

Unfortunately, as the disease progresses communication will become more and more difficult. By the later stages of dementia or Alzheimer’s disease, it may be reduced to sounds or movements. Consider the feelings behind those gestures.

Focusing on What’s Important

Communication is a tool. Use it to understand what is important to your loved one as they face their diagnosis and adjust to living with the disease. Remember that there is no shame in having dementia and to always treat your loved ones with the dignity and respect they deserve.

 

Author Info

blake harris

Blake Harris is the Managing Attorney at Mile High Estate Planning where he assists clients with Wills and Trusts, Asset Protection, and Probate. Blake has extensive knowledge and experience helping families plan for and manage the transfer of their assets.

 

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4 Realistic Self-Care Strategies for Alzheimer’s Caregivers — The Diary of An Alzheimer’s Caregiver

It’s something we don’t talk enough about, but it is so important: self-care. I know that phrase has become a bit touchy in certain circles, because it can seem like you are dumping one more responsibility on an already overworked caregiver. The sad truth is that in most cases, no one is going to offer you a respite out of the blue. You have to know your limits as a caregiver, ask for help when needed and yes, take care and be kind to yourself.

Read these helpful self-care tips via the blog post below from The Diary of An Alzheimer’s Caregiver.

Sign up to get these posts and a whole lot more delivered right to your inbox! The Diary of An Alzheimer’s Caregiver – Appreciate the good, laugh at the crazy, and deal with the rest! Caregiving is hard no matter what. Alzheimer’s caregivers, however, have an especially difficult job. Not only do people with Alzheimer’s…

via 4 Realistic Self-Care Strategies for Alzheimer’s Caregivers — The Diary of An Alzheimer’s Caregiver

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August 23, 2019 · 5:27 pm

A house built for dementia

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Courtesy: BRE Group

I found this dementia housing project designed by Loughborough University and BRE to be fascinating and helpful to caregivers trying to retrofit a home for a loved one with dementia.

The BBC recently took a video tour of the completed project.

The attention to detail of where items were placed, the color scheme and the importance of natural light to combat sundowning are all excellent ways to address common issues associated with dementia. Feeling safe and comfortable can also help reduce the risk of anxiety in those with dementia. Best of all, the model still felt like a home, with the safety featured nicely integrated.

Hopefully prototypes like these can be incorporated in the real world to help families care for a loved one with dementia at home instead of having to place them in a high-priced facility.

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Falls are Game Changers for Older Adults

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This is such important information for family caregivers. To put it bluntly, a fall for a frail loved one can signal the beginning of the end. Both my mother and father experienced falls as their health situations declined. Learn more and tips on preventing falls from Kay Bransford.

via Falls are Game Changers for Older Adults

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August 9, 2019 · 8:50 pm

Moving video on ‘Leaving Alzheimer’s Behind’

 

Those who have faced Alzheimer’s or other dementias in their families know that it can be a dreadful roller coaster ride, and while in the early stages there may be quite a few “good” days, they often seem overshadowed by the “bad” days.

One man in the UK who has early-onset Alzheimer’s is hoping to send a different, more hopeful message. He is using his beloved hobby of cycling to spread the message across the country.

Peter Berry was diagnosed with early-onset Alzheimer’s at 50, after 3 long years of trying to obtain a diagnosis for his increasingly troubling symptoms. He sank into a deep depression for about a year, but when he emerged, he was determined to help others who find themselves in a similar situation. Through a video series and on social media, Berry shares his experience and what has worked for him, including a healthy diet, regular sleep and long bike rides.

While he’s under no illusion as to what Alzheimer’s ultimately holds in store, he stresses the importance of having a positive outlook: “People who suffer from the disease know the journey and path we’re taking. We all know the end product of this disease. But it’s all about what you do in between. It is not about what I can’t do, but what I can do.”

Watch his inspiring story, produced by Being Patient, and share with others.

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Protect elder loved ones from becoming phone scam victims

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The phone was my mother’s lifeline, but it also served as a source of strife in my role as a caregiver.

While most people have disdain for telemarketers, my mother welcomed the calls. This was especially true once my father was placed in a memory care center, and in the period after his death. My mother was lonely and a human voice on the other end of the line, even one trying to sell her something, was a source of comfort.

My mother never bought anything from the telemarketers, but there was one time in which I became livid because I felt she revealed too much personal information. She told the telemarketer about her lottery winnings. I wanted to reach through the phone and shake her (but gently as she had a broken shoulder from a fall.)

She could not understand why I was so upset, even after I tried to explain in multiple ways how revealing that you have a lump sum of money to a stranger who has your contact information is a bad idea. It was one of the few times I literally hung on up her out of frustration.

I wish my mother had the teleCalm service back then. It offers a host of senior-friendly options and features that are useful for caregivers. The Essentials service replaces the current home phone service of your elder loved one, replacing it with a monitored service that can filter out scam and telemarketer calls. An additional service provides caregivers with a smartphone app that includes monitoring features that can be accessed remotely.

For those with dementia and their caregivers, teleCalm could help ward off predators and scam artists who try to take advantage of those with impaired cognition. If you have used the service, I would love to hear your feedback.

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Do your part in the fight against Alzheimer’s by joining new registry

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As family caregivers to those with Alzheimer’s or other forms of dementia, we can feel helpless in the fact of such a brutal disease. What could we possibly do to help find a cure or effective treatment? While we know researchers are hard at work, they can seem far removed from the daily grind that a family finds themselves in when dealing with dementia.

Joining a registry is a simple way to contribute to the cause. I belong to the Alzheimer’s Prevention Registry. According to the registry, 80 percent of studies are delayed because too few people sign up to participate.  So you can really make a difference.

A new registry, the Synexus HealthyMinds Registry is seeking those 50 and older in the U.S. who do not have an Alzheimer’s diagnosis. The registry is free to join and all participation is done online for your convenience. Once a year, you will be asked to fill out a health and lifestyle questionnaire and take a series of online tests to gauge cognitive function. The registry I participate in is similar and I actually enjoy the tests because they are like brain games.

Check it out and if you are interested, please join and share with others. We are all in this important effort together.

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AlzAuthors marks 4th anniversary with a book sale

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I am so proud to be part of the AlzAuthors group. I can’t believe the group of Alzheimer’s and dementia writers is marking its 4th anniversary! It has been so rewarding to see this group expand over the years and I applaud the hard work of the core founders who have shared our books to caregivers around the world.

If you haven’t visited the website in awhile, check out the redesign. I love it!

To mark the occasion, AlzAuthors is hosting a book sale and raffle. Choose from 19 free and discounted books. My award-winning collection of personal essays, The Reluctant Caregiver, is just 99 cents during the promotion, which runs through June 27th. (Note: Amazon is still processing the discounted rate as of Friday morning, but you can use this link to buy the book for 99 cents at other major digital book retailers right now.)

You can also enter a raffle to win free books from select AlzAuthors contributors.

Please spread the word to fellow dementia caregivers and thank you for your support!

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Amazing Benefits of Massage for Alzheimer Disease Patients — The Diary of An Alzheimer’s Caregiver


We often overlook the powerful benefits of human touch. Learn how massage could lift the spirits of your loved one with Alzheimer’s. And don’t forget about the benefits of massage for yourself! I find a massage to be so rejuvenating.

via Amazing Benefits of Massage for Alzheimer Disease Patients — The Diary of An Alzheimer’s Caregiver

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June 13, 2019 · 11:54 am

Bipartisan effort to provide families with vital data on struggling nursing homes

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Pixabay

Any kind of bipartisan effort in today’s toxic political climate is reason to cheer. When it involves uncovering nursing homes offering substandard care, it’s all the more reason for caregivers to be grateful.

Pennsylvania senators Bob Casey (D) and Pat Toomey (R) joined forces to release a report titled, “Families’ and Residents’ Right to Know: Uncovering Poor Care in America’s Nursing Homes.”

An investigation into reports of abuse and neglect at nursing homes in the senators’ home state prompted the report. It focuses on struggling nursing homes that have been designated a Special Focus Facility. There are 88 nursing homes that are participants in the program. Approximately 400 nursing homes are identified as candidates. Participants receive more frequent inspections and are identified to the public; candidates are not.

What the senators wanted family caregivers like you and I to know are the names of the hundreds of SFF candidate facilities, so that we can make the most informed decision possible when it comes to our loved one’s care.

You can review a list of SFF participant and candidate facilities that’s included in the report. You can also read disturbing reports of neglect and abuse that has been reported at these facilities, which includes allowing residents to escape, providing inadequate medical care and sexual assault.

I discovered a facility that my father stayed at briefly post-surgery. At the time, the facility admitted they did not have the resources to care for my father, who was in the mid-stages of dementia and often wandered.

Much more needs to be done to ensure that our nation’s nursing homes are providing proper care to our loved ones, but providing this bit of information helps families make more informed choices.

 

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