Guest Post: Can Anything Slow the Sad Progression of Alzheimer’s Disease?

Guest blogger Alicia Lawrence offers simple ideas to improve the quality of life of your loved one in the earlier stages of Alzheimer’s.

Once you’ve gotten over the shock of your loved one’s diagnosis of Alzheimer’s, your thoughts inevitably go from disbelief to the desire to do something, or at least mine did when my mother began forgetting things. I immediately began researching whether there was any way to stop the progression of this terrible disease.

I wish I could tell you that there’s a magic formula — eat right, exercise and do crosswords, eat only dark chocolate and green tea! Unfortunately, as we all know, there’s no magic cure. But there are methods that may work to slow down the disease’s progression in the short term, and that’s what I’d like to share with you today.

crossword

Mental Stimulation

Actually, doing crossword puzzles does help a little. Any sort of increased mental activity can help ward off the progression of Alzheimer’s by stimulating the brain. If your loved one isn’t a gamer, it doesn’t have to be crosswords.

Engage their brain by encouraging them to read a book, write a story, play the piano or learn a new language. Heck, quiz them on the make and model of the kitchen cabinet hardware from their very first house or their grandchildren’s birthdates — anything to get that brain working.

Avoid Stress

Alzheimer’s is not caused by stress. But stress can exacerbate symptoms, and in the early stages of diagnosis it’s very difficult for patients to avoid stressful situations, such as informing family members and discussing plans for the future.

Do your best not to add to your loved one’s stress. Help establish routines that are both comforting and helpful for someone struggling with memory issues. Make sure that meals, baths and doctor’s appointments are all on a schedule. Get everyone who’s involved in care to get on board with the schedule to make things run smoothly.

Try Dietary Changes

The evidence on diet and disease is admittedly thin, but many think it’s worth trying different combinations of healthy, nourishing foods to try to reverse illnesses of all types, from cancer to Alzheimer’s. Several things seem to have had particular success for Alzheimer’s patients.

One is taking more antioxidants, including Vitamin E, which protects against cell damage and has been shown to slow the onset of Alzheimer’s symptoms. Folate has been shown to lessen the risk of getting Alzheimer’s, though researchers are still studying the link between slowing of symptoms and this B vitamin.

Gingko Balboa has also been linked to a slowdown of symptoms in early Alzheimer’s patients, though those studies are somewhat controversial. Still, doctors agree it probably can’t hurt to include gingko as a supplement along with other vitamins.

No matter how dreary the situation looks, never stop trying. Have fun and enjoy the company of your loved ones while they are still here. Sometimes laughter can be the best medicine of all.

About the author: Alicia Lawrence is a content coordinator for a tech company. In her free time, she enjoys hiking, cooking healthy meals, and writing on her blog MarCom Land. Find Alicia on Google+

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Visiting Dad’s place of death

After spending time with Mom for her birthday I ventured north to Albuquerque. I haven’t been back to Albuquerque since the last time I saw my dad alive. I held his hand for as long as I could before having to catch a plane back to Atlanta. Dad was moved to a skilled nursing facility shortly after that. He died a month later, also in Albuquerque.

Presbyterian Hospital, the last place I saw Dad alive.

Presbyterian Hospital, the last place I saw Dad alive.

So I had mixed emotions about returning to the city. Of course it was blazing hot but I felt welcomed by all of the people I came in contact with, from the hotel staff to cab drivers to restaurant servers. I also finally had the opportunity to see the place where Dad passed away. Fortunately, the place seems to be well-run, clean and has plenty of natural light. It has a nice activity room with birds and plants and an impressive rehabilitation center. Of course, a visit to a nursing home is always depressing to a certain extent and there was a lady with her head resting on her chin, completely oblivious to the puzzle in front of her in the activity room. There was such hope on some of the rehab patients’ faces. I hope they are able to become independent again, to walk again, to return home, whatever their goals may be.

The view from the nursing home.

The view from the nursing home.

I liked how the facility allows residents to eat whatever they want for meals, so if they want a grilled cheese for breakfast they can have it. With adequate nutrition being such a struggle for nursing home residents, this is a positive approach to take. Also, I was greeted by a visiting therapy dog as I entered the facility. Dolly the greyhound was so sweet and gentle, I’m sure she brightened the residents’ day. The area around the facility is mainly suburban and residential, so it seemed very quiet and peaceful, with a beautiful view of the mountains in the background. Butterflies and birds greeted me on my way out. Not such a bad place to die, I suppose.

The Crossroads Motel sign.

The Crossroads Motel sign.

Perhaps the most telling sign that my trip to Albuquerque was meant to be was my hotel room. It overlooked the Crossroads Motel sign. For fans of the television show, “Breaking Bad” this will be familiar. But for me it has a deeper meaning. I was greeted by that sign each day as I looked out my dad’s hospital window back in November 2011 while he was in CCU. I remember noting how appropriate the sign was, since Dad was himself at the crossroads between life and death. And now I feel like I’m at a crossroads as well. Future career, processing grief, developing a caregiving plan for my mom, there are so many things to consider. But for now, things are looking brighter. Maybe not as bright as that Albuquerque sky, but at least Mom’s oncologist just gave her great results and she continues to improve and remain independent.

It was a good trip. I feel like now I can appreciate Albuquerque for being more than where my father died.

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Dementia and Suicide

Good information here to start an important discussion regarding suicide rates among Alzheimer’s patients and their caregivers.

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Dementia care center facing abuse charges

A local story caught my interest today. It’s a sad one, and a story that no one wants to hear, especially if you have a loved one in an Alzheimer’s care facility. The caregivers at a metro Atlanta memory care center are facing 72 abuse-related charges. The allegations include restraining patients with bedsheets, throwing water at patients and putting multiple diapers on patients so they wouldn’t have to change them as often.

The facility was immediately shut down and both current and past caregivers will have their day in court. The most surprising aspect of the case to me was the interviews with the relatives of patients who were residing at this facility. The ones the local news interviewed were shocked by the allegations. One woman had even moved her mother from another facility to this one because she was receiving inferior care at the first facility. No one interviewed had seen anything related to the charges filed. Either the case is overblown or the caregivers were good at hiding their abusive actions.

The relatives were also upset about having to “claim” their loved one at a moment’s notice, since the facility was immediately shut down. It is a shame that there is not some safety net in place so that families are not left looking for another care center on their own while having to take care of their loved one at home. (One woman said it took months to find the right center, and I’ve read stories from bloggers who have said the same thing.)

The takeaways from this case for me is to really look at a care center from top to bottom as objectively as you can. Try to visit outside of normal business hours if possible. With Dad, we were not able to visit as regularly as we’d have liked, but with Mom I was there almost every day. Did it make a difference? I feel like they received a similar quality of care but I felt more in control by being a daily presence. Of course, visiting daily is not viable for everyone and should not be required for your loved one to receive compassionate care.

The second takeaway for me is having a backup plan. If the facility where your loved one resides is suddenly shut down, are you prepared to house them indefinitely? I know my house with stairs is not safe for a dementia patient. If you have siblings or other relatives, have you discussed with them if they would be willing to provide temporary housing? Taking in a dementia patient requires 24/7 care as we all know. Are there sufficient at-home services in your area? I know where my mom lives, the home care resources are very limited.

A tragic case provides some food for thought.

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A powerful play about dementia

On Monday, I was lucky enough to get a chance to attend a free reading of the play, “Absence” by Peter M. Floyd. It was presented at the Alliance Theatre, one of Atlanta’s most respected theatre companies. Before the reading, there was a senior care resource center where local companies were on hand to talk about their products.

The play itself is quite simple, yet powerful. A strong, vibrant woman develops dementia and the play illustrates the impact her diagnosis has on her and her family. Anyone who knows someone with dementia will be able to relate to the themes of the play: denial, anger, frustration, sadness, desperation.

There are a some moments of humor sprinkled throughout but overall the play is a sobering reminder of the impact dementia has on family relationships. I was intrigued by the personification of the disease in the form of a wise-cracking doctor with a northern accent. Throughout the play, he acts like a drug pusher trying to peddle heroin on an unsuspecting youngster, telling the lead character that Alzheimer’s wipes the slate clean, along with all of your regrets and mistakes, making you feel free. It’s an interesting perspective.

The lead character and her daughter reminded me of my own relationship with my mom. I would love to see the play fully produced, as I was really blown away by the reading alone.

If you get the chance to see this play, don’t hesitate but be prepared for it to hit close to home.

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Walking for Dad on The Longest Day

This year I actually have the opportunity to participate in the Alzheimer’s Association campaign, The Longest Day. Since this is the day it stays light the longest, today is the perfect opportunity to shine a light on Alzheimer’s awareness from dawn to dusk. Last year I was at work so I couldn’t fully participate, but I had no excuses this year!

Walking the Beltline in Atlanta for Dad on The Longest Day 2013.

Walking the Beltline in Atlanta for Dad on The Longest Day 2013.


People do all sorts of things to honor their loved ones for The Longest Day campaign. People hike, run, swim, ride a bike, just anything to get out there and spread awareness. I chose to walk because Dad loved to take long walks and I do too! I decided to walk the Beltline, which is an exciting project here in Atlanta that is repurposing the long abandoned railroad tracks that still exist around the city and converting them into a walk/run/cycling trail that links up many intown neighborhoods. I was skeptical about the project at first I have to admit, but now that I have experienced one of the first phases of the project, I feel like it’s coming along nicely.

Piper the Beltline Kitty came out to greet me on my walk for Dad!

Piper the Beltline Kitty came out to greet me on my walk for Dad!

Today I walked the Eastside Trail from Piedmont Park in Midtown to Inman Park. Driving that route is almost a five mile trek. But thanks to the Beltline, you can walk there in half that distance. I made it to my destination in about an hour and am writing up this blog post at a neighborhood coffee shop. I’m going to keep spreading Alzheimer’s awareness throughout the day by staying active on social media and doing more walking!

I would love to hear how others are honoring their loved ones and spreading Alzheimer’s Awareness on The Longest Day. To follow the action on Twitter, use the hashtag #thelongestday.

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Remembering what is important on Father’s Day

For those of us who have lost a father due to Alzheimer’s complications or who are watching their dad battle the disease right now, Father’s Day is a holiday with mixed emotions. But while the damage Alzheimer’s inflicts on families should never be forgotten, this is also a good day to reflect on the positives of your relationship with your dad. After all, you might not be feeling such pain or loss if you did not value him and love him deeply as a father to begin with. For some people being estranged from their father makes this holiday a very painful experience as well.

For me, the realization that I did deeply love my dad and didn’t have this distant, indifferent relationship I always imagined came after Dad began losing his mind. That is unfortunate, but I know right before he started to change, I was able to tell him how I know it was difficult dealing with Mom sometimes and to just try to hang in there. In fact, one of the last things I remember him saying to me on my last visit before he became ill was, “Your mother is driving me crazy!”

dad-joy-sm

I can still hear his hoarse, smoker’s voice making that half-joking, half-serious accusation. (My parents drove each other a little crazy, but they were devoted to one another.)

I could beat myself up today for not being there more often for my dad when he began the sad, slow slide into dementia. But at least I did get to hold his hand and tell him how much I loved him in the last couple of months of his life. And he was even aware and able to respond at one point: “I know you do.”

Actions of the past can’t be changed so as caregivers and family members we should stop being so hard on ourselves. Take today to remind yourself of the more pleasant times and let them bring joy to you even now as you mourn or suffer.

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Tracing Dad to The Bronx

So on my continued quest to follow Dad’s early years in America, I present another one of Dad’s former NYC residences. Next stop: 1650 Topping Avenue in The Bronx.

Building in The Bronx where my father once lived. Image: Google Maps.

Building in The Bronx where my father once lived. Image: Google Maps.

The building looks to be in decent shape, though from what I gather, the neighborhood isn’t the best. The Bronx Historical Society offers interesting perspectives from former Bronx residents who lived in the neighborhood around the time my Dad resided there. Historic Claremont Park is just steps away and is one of the neighborhood’s oldest greenspaces. I found a blog post from a doctor who talks about playing punch ball as a kid in Claremont Park from 1948-1953, just a few years before Dad lived in the area.

I’m enjoying my virtual tracing of Dad’s life in this country. I love history so learning more about such iconic areas of the U.S. is a treat.

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Dementia patients may try to mirror emotions

I read about an interesting study today that found those in the early stages of Alzheimer’s may try to mimic the emotions of those around them. The results suggest that it is in the best interest of caregivers and family members to try to maintain a calm and positive demeanor in the presence of those with dementia. I know, easier said than done, right! Still, it is interesting to wonder if the emotional disturbances and changes are a result of Alzheimer’s patients becoming more sensitive to the emotions of those around them. And anyone who has dealt with someone with Alzheimer’s knows that there is a great deal of anxiety, frustration and sadness, especially early on before proper coping mechanisms are developed. The condition has a name: emotional contagion.

A new study finds that dementia patients may mirror the emotions of those around them.

A new study finds that dementia patients may mirror the emotions of those around them.

I’m not sure I witnessed my dad mimic other’s behavior but I did notice his excessive attempts at “fitting in” or being part of a conversation or situation. He would try to make a relevant comment but I could tell by his eyes that he had no clue what Mom and I were discussing. As I’ve mentioned in previous posts, this stage of the disease is actually more heartbreaking to me than later on, when many patients “disappear” emotionally. Once Dad entered the nursing home, he was heavily medicated as most dementia patients are, which tends to turn one into a zombie. I struggled more with Dad trying to be upbeat and tell jokes even while he was clearly losing his mind than the sullen, withdrawn shell of a person he became in the nursing home.

Whether the person with dementia mirrors the emotions of others are not, it of course is best for everyone if a calm and stable atmosphere is maintained. That’s not to say you should beat yourself up if you show exasperation in front of your loved one with dementia. It happens, we’re human. But even while dementia strips away abilities and memories, it may magnify sensitivity in other areas that before we have ignored.

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Live and Let Die

Assisted suicide is a controversial topic and when discussing it from a dementia perspective, the issue becomes even more complex, both legally and morally. I appreciate Living with Dementia opening the discussion on their blog.

Wanderer's avatarLiving with Dementia

The subject of this post may not be suitable for some readers, and could be hard reading. It is regarding assisted suicide so please do not read if you feel it may make you uncomfortable. I however have decided to write about this tricky subject in the best way I can as I do think we should talk about it, it’s implications and whether for some, it may be the best way.

This was a post I wanted to write some time ago after reading a news article about Melvyn Bragg. For those of you who have not read it Melvyn had watched his mother struggle with dementia up until her death.

This prompted him to insist on the right for assisted suicide (for those with dementia). The article also calls on Sir Terry Pratchett, who was diagnosed with dementia when he was 57. He also agrees that assisted suicide…

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