The good news is that COVID-19 vaccines have been developed in record time and are being rolled out to the public. The bad news is that the distribution of the vaccines is off to a rocky start.
Front-line health care workers and nursing home residents are supposed to be top priority when it comes to the first phase of vaccine distribution, according to federal officials. The problem is that the coordination and management in distributing the vaccines has been left to local governments, meaning each city/county/state has their own rules on how the public can sign up to get the vaccine. New York City residents report facing a ton of red tape in trying to make an appointment. Some regions have online only appointment systems, which can be a roadblock for those who are not tech savvy. The strict temperature requirements for the vaccines mean that in certain cases, places open up vaccinations to anyone, in order to avoid having to discard spoiled doses. The chaos that has ensued and the lack of efficient communication at the local level has left some elders to contact their local media outlets for assistance in setting up a vaccine appointment.
In short, it’s a mess. I do have some hope that more stable leadership at the federal level will help iron out the vaccination rollout. Getting the pandemic under control will be the top priority, and there should be a greater willingness to partner with local governments to support the success of their vaccination programs. This truly needs to be a group effort. The more effective the vaccination program is, the quicker people can return to the lives they cherish, including spending time with family and supporting the businesses in their community.
So if you are an elder or an elder caregiver, where do you begin? Start with your family physician, who can confirm which vaccine phase group you are in, and offer a general timeline on when you may be eligible to receive the vaccine. Next, reach out to your local health department. Policy & Medicine offers this state-by-state list of local health department resources. Be patient, as websites and hotlines are overwhelmed right now. As the vaccine stockpile grows, there will be more places that will offer the vaccine, including pharmacy chain stores like CVS. Finally, don’t skip the second (booster) shot! It is necessary for the vaccines currently available to the public. I’ve seen several news reports of a steep decline in the rate of people returning to get their second vaccine dose. While a single dose will offer some protection, two doses are necessary for the most effective protection. Johnson & Johnson is working on a single dose vaccine, which hopefully will gain approval soon.
If you or your loved one has received the vaccine, please comment below about your experience.
It’s the ninth anniversary of my father’s death, and that also means it is time for my annual PSA (public service announcement) about being gentle and non-judgmental with those who choose not to celebrate the holiday season because they’ve lost someone during this time of year.
The coronavirus pandemic that has claimed more than 300,000 lives in America will put a damper on this year’s festivities. But I also noticed the opposite effect, with neighbors putting their Christmas decorations up well before Thanksgiving. Both are natural reactions and we should respect the way individuals choose to cope.
This year as I reflect upon the anniversary of my father’s death, I remembered a detail I came across in a card he had attempted to write one of his sisters, but no longer had the cognitive function to address and mail. He had written in the card that he had been diagnosed with the swine flu. He had not received such a diagnosis, but the H1N1 pandemic was in the news at the time. Dad had latched on to that to explain what was happening to his body. That memory came back strong this year as the coronavirus pandemic unleashed its fury across the world.
Related to the pandemic and the need to wear masks, I also am reflecting on the fact that Dad would likely have been anti-mask. In 1986, when I was 12, wearing seat belts became mandatory when driving a vehicle in California. I remember many heated arguments in the car because of my father’s stubborn refusal to put on his seat belt. He claimed wearing the belt was constricting and made him feel like he was choking. Sound familiar this year? As an ill-advised compromise, Dad would drape the belt over his torso, but not latch it. Fortunately we never had any serious accidents. According to the Los Angeles Times, my father was part of the majority who at the time did not wear seat belts on a regular basis.
It has been the strangest and most challenging of years and the holiday season is no different. Connect with those you love however you can safely. Offer words of comfort and healing to the many who are grieving.
It will be a different kind of Thanksgiving celebration this year for many families. Smaller gatherings, not getting to hug elder loved ones, some spending the holiday in isolation.
I hope by this time next year, we will largely have put the coronavirus epidemic behind us. Having spent almost the entire year in its grips, we must be resilient for the next few months as vaccines become available. I know many are understandably exhausted, but there does appear to be a light at the end of this tunnel.
There are many things to be grateful for this year.
I am grateful to the healthcare workers, from the ICU nurses to nursing home staff to home health aides, who put their lives on the line each and every day to take care of the rest of us. That is an awe-inspiring sacrifice. (To the thousands who lost their lives to COVID-19 while caring for others, I express my gratitude to their grieving families.)
I am grateful to all of the frontline workers, from grocery store clerks to transit employees to those in food production and utilities. They kept the rest of us who were isolating at home up and running, so we could continue doing our jobs and taking care of our families.
Of course I want to give thanks to the family caregivers. The stress and anguish they have gone through this year is devastating. I’ve read so many heartbreaking accounts of families not being able to visit loved ones in nursing homes because of lockdowns. Watching their loved ones physically and mentally decline via Zoom or standing outside, separated by a glass door or window is something no one should ever experience. Many families couldn’t even be with their loved ones as they died. For those caring for vulnerable family members at home, every sniffle put one on high alert. Trying to keep loved ones at home healthy, comfortable and entertained while reducing their risk of infection is a monumental task. Many caregiver resources have been limited or shut down due to the pandemic, leaving families to fend for themselves.
This Thanksgiving, I hope you are able to find some joy and comfort, even if your celebration has to be altered due to the pandemic. As a token of gratitude, I am participating in a book giveaway. Both The Reluctant Caregiver and CBD for Caregivers are available for free.
November is National Family Caregivers Month. This year’s theme announced by the Caregiver Action Network is “Caregiving in Crisis.” It’s an appropriate theme as the coronavirus pandemic has propelled family caregiving into the national spotlight. In 2020, many Americans found themselves as caregivers for the very first time.
This year’s election was dominated by the coronavirus pandemic. The new administration will have its hands full in trying to bring the pandemic under control, while initiating economic reforms to stabilize the economy. Once again, caregivers play a critical role in both areas.
Here are a few high priorities on my caregiver wish list:
Increased financial support for family caregivers: With unemployment rates still high due to the pandemic, it is critical that we offer ample funds and other benefits to those family caregivers who are at financial risk. You cannot care for others if you can’t care for yourself first.
More affordable health care options: The ACA was a start, but has significant gaps. The haphazard federal response so far to the pandemic has left some people with pricey medical bills. Hospitals are closing in rural areas when medical care is needed the most. If we’ve learned nothing else from 2020, it is that affordable and accessible health care is a critical need.
Increased pay, benefits for professional caregivers: Family members cannot do it all on their own. But the caregiver workforce in America is woefully underpaid. We must improve the pay, benefits and educational opportunities for caregivers so we can attract the best people to these jobs which the pandemic has illustrated are of immense importance.
Build a modern eldercare infrastructure: Our population will continue to grow older, live longer and the majority of people want to age in their own homes. We’ll need to develop accessible housing, strengthen our home care network and improve elder resources, especially in rural areas, so that people can grow old where they want, but safely and with ample support.
Many may have mixed feelings about celebrating Halloween in such a difficult year that has been filled with so much real-life horror and death. For those who have lost a loved one, the sight of neighbors decorating their lawns with grave and skeleton decorations may seem insensitive. For those who have children or others in their lives who love celebrating the holiday, it may be important to maintain some semblance of normality.
I definitely feel both of these perspectives when I take the dog on neighborhood walks. Some decorations are quite elaborate and creative, and make me smile. Then I feel an inward cringe when I see the grave markers with RIP stamped on them. I can’t help but think of all of the lives lost this year due to the coronavirus pandemic.
Personally, I love Halloween and enjoy the spooky decorations more than Christmas ones. But I remember feeling a similar ambivalence about Halloween the year my mother died, though she died months before the holiday. I instead focused on the happy Halloween memories we had as a family.
I also had a critical reaction to seeing Christmas decorations being put up at the hospital where my dad lay dying in the ICU. When you are in a family health crisis mode, your perspective narrows. How dare all of these strangers celebrate the holiday when my dad is dying? Realizing the world doesn’t stop for you is a tough, but necessary lesson to learn.
Happy Halloween to those who do celebrate, and hope you receive all treats and no tricks. And if you are grieving and struggling with seeing Halloween decorations, I understand. I hope you can have a quiet night honoring your loved one’s memory.
A free treat for all: You can get both of my books, The Reluctant Caregiver and CBD for Caregivers, for free through this Halloween giveaway.
This is not going to be a partisan political post. I truly believe senior care and caregiving is a bipartisan issue and will take the cooperation of members of all parties in order to pass much-needed legislation.
But the pandemic that has changed so much in 2020 is also changing the way we vote. How you vote and where you vote depends upon your local jurisdiction and personal preference; my only advice is to plan now if you haven’t voted already.
There are arguments to be made for and against the various forms of voting available this year. Here in Georgia, I took advantage of absentee voting and have already mailed in my completed ballot. Thanks to technology, I was able to monitor its progress and received electronic notification when it had been received and approved for processing.
For those who prefer to vote in person, check out your options for early voting. Many states are offering expanded voting locations and it may be a good way to avoid potentially long lines on election day. If you decide to go the traditional route and vote on Nov. 3, be prepared to wait in long lines. Hopefully it won’t be as bad as recent elections, due to the massive amount of people who are voting early this year.
And caregivers should keep COVID-19 in mind when making a voting plan, for yourself and your loved ones. Weigh the risks and comfort level when making your voting plan. Check with assisted living centers to see if they have a plan to help residents vote. For those needing a ride to vote, check out promotions from Uber and Lyft. Make sure to mask up if voting in person, and use hand sanitizer after touching the machine. The one caveat I would point out about waiting until election day to vote is with coronavirus cases on the rise in many areas of the U.S., do you want to run the risk of being sick and missing out on the chance to vote? Just something to consider.
After the election, the real work begins on working with those elected to create sensible, practical caregiving policies that offer families the support they deserve.
As we face another potential wave of coronavirus cases this fall and winter, this post by Elaine M. Eshbaugh, PhD, on When Dementia Knocks addresses the challenges of caregiving during this unprecedented time with compassion and humility. None of us have all of the answers and we cannot beat ourselves up for making mistakes.
I haven’t given COVID as much attention in my blog as it deserves. I’ve started many posts and abandoned them because they felt inadequate. To be fair, I have gotten a bit of hate the few times I’ve written posts about COVID. Examples: I thought you were smarter than this. COVID isn’t any worse than […]
This blog post written by Elaine M. Eshbaugh, PhD, has such a good message for all of us right now, especially caregivers. It is so true that you must learn to “let go” when dealing with dementia. Those of us who have been dementia caregivers have navigated our ways through “new normals” before. Stay safe and don’t be too hard on yourself.
So what’s your personal 2020 theme? (Can you answer this question without using a four-letter word that would’ve gotten you in trouble at recess?) You’ve got your personal and family challenges, which likely include dementia since you are reading my blog. You’ve got whatever chaos is happening in your community. Maybe people are arguing about […]
I’d like to take this moment to express my gratitude to all of the caregivers who have gone above and beyond the call of duty to care for their clients during the coronavirus pandemic. If there is anything positive to come out of this difficult period in our history, it is that the duties of care workers are absolutely essential and have been undervalued by society.
As Ai-Jen Poo writes in the article, Bringing Dignity Back to Essential Work, “I think we have a moment where we’re all taking a step back and seeing just how many people are powering our economy that we just never saw before, that we never valued appropriately, and who keep us safe but we haven’t kept them safe.” Think about the essential workers who have made our lives easier during lockdown, including caregivers, grocery store workers, and delivery drivers. These are roles many have taken for granted, but no more. “Once you see the value of what somebody brings to your life, your safety, your community, your economy, it’s hard to unsee that,” Poo writes. I couldn’t agree more.
Immigrants, women and people of color make up a large part of the caregiver workforce, including those who provided care to my parents. As we take stock during these challenging times, we have the opportunity to address past mistakes, such as underpaying care workers and not providing them with the benefits and the community support they need and deserve. This is not an idealistic, but realistic endeavor. As Poo points out, care workers allow the rest of us to go do our jobs, increasing productivity across the board.
I’m donating to Caring Across Generations to support their work in elevating the dignity and rights of caregivers. I encourage you to support your local caregivers in whatever way you can.
Many people are wondering how to handle Mother’s Day during a pandemic. If you are fortunate enough to have a good relationship with your mother, but are intent on keeping her healthy, you may decide not to meet in person. But there are many ways you can show her love this weekend from afar. And with so many lives lost this year, reach out to your loved ones and make sure they know how much you care.
A simple phone call would mean a lot to mothers who may feel isolated right now. Bonus points if the two of you can figure out how to video chat! Sending flowers is a simple, thoughtful gift that will brighten someone’s day. Mobile dining apps means you could have brunch delivered safely to her home. If you sent your mother a card, good for you. If you forgot, you could still send an e-card or a gift card electronically, if she has email access.
I’ve been reading about a lot of celebrations taking place in creative fashion, like a drive-by parade or holding messages up to the window. If possible, get the grandchildren involved and make it a family activity to brighten the spirits that may be strained during the stay-at-home period.
This Mother’s Day may look different than it does in a typical year, but you can still express your love and gratitude. And for those of us who no longer have our mothers, take time this weekend to reflect on happier times and cherished family memories.
I hope you and your family have a wonderful Mother’s Day.