Category Archives: Memories

Happy Mother’s Day

Happy Mother’s Day to mothers of all kinds. I will be holding space for all of us whose mothers are no longer here.

On a related note, congratulations to Katie Engelhart, contributing writer for The New York Times Magazine, who won a Pulitzer Prize for Feature Writing for The Mother Who Changed: A Story of Dementia. With compassion and clarity, she shared this family’s complex and fraught journey with dementia. The piece raises important ethical and moral issues that should be discussed.

In case you missed it, I’m sharing again a poem about my mother that was published by The Prose Poem earlier this year. “Her Lists” is my way of coming to terms with some of my mother’s more eccentric qualities. Below is an example of one of her lists for reference.

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Marking Dad’s birthday in a special place

I had a work trip this week that took me to New York City for the day. It just so happened to fall on what would have been my father’s 92nd birthday. It was nice to be able to mark the occasion in the first city my father lived in after immigrating to America.

While it’s been almost 70 years since my father walked the streets of the Big Apple, the city’s nonstop energy remains. I can only imagine what my father felt walking these streets, gazing up at skyscrapers, and being part of a community filled with a wide range of cultures and languages. As a young man with his whole life ahead of him, it must have been exciting and likely a bit overwhelming.

On my flight back home, a couple of strangers struck up a conversation and the topic turned to Alzheimer’s. Both were caring for people with dementia, with the man saying he cared for three gentlemen who were younger than him. I find that the amount of people whose lives have been touched by Alzheimer’s has grown a great deal since my father died in 2011.

Check out my dementia caregiver product recommendationsAs an Amazon Associate I earn from qualifying purchases.

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Embracing our loved one’s eccentricities

I recently had a poem about my mother’s infamous shopping lists published. You can read “Her Lists” at The Prose Poem.

My mother’s lists were like a look inside her busy bee brain. It may have seemed like an oxymoron, but my mother’s chaotic organization style worked for her. That was fine until I became her caregiver and then I was the one responsible for interpreting her wacky roadmap.

I wrote “Her Lists” during a poetry workshop a few years ago. I tinkered with it just a bit since then, but it mostly came out as is on first draft. If you’ve had challenging caregiving moments that you are trying to work through, engaging with them in a creative process may be helpful. Taking a look at such moments with a different lens may be healing and provide some sense of closure.

Feel free to share my dementia caregiver product recommendationsAs an Amazon Associate I earn from qualifying purchases.

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Being an only child and caregiver to your parents

With my parents before my father moved into a memory care center.

The Wall Street Journal published an article recently about the beginning of an only child boom and its impact on caregiving. As an only child, I could relate all too well to the main subject of the article. I felt overwhelmed many times during my caregiving journey, and felt the crushing weight of making life or death medical decisions on my own.

On the other hand, every time I’ve mentioned the challenges of being an only child and caring for aging parents, I’ve heard from others who had siblings but still felt like only children because their siblings refused to help with caregiving duties for their parents. Or in other cases, siblings would squabble over making decisions in the care of their parents, leading to fractured relationships. So I understand how whether being a small or large family, caregiving comes with its challenges.

One of the people profiled in the article talked about having to make a life-or-death medical decision for their mother while being in another country several thousand miles away. In the comments section, someone inquired why distance would make the decision more difficult. I can speak personally to this, as I was 1,300 miles away when I got a call the morning of Black Friday, with a nurse in rapid-fire speak informing me my dad was crashing and should they engage in life-saving measures or not. The nurse had first tried to reach my mother, but she took sleeping pills and wore ear plugs when sleeping, so she didn’t answer the phone. Now the life and death decision was in my hands.

But it really wasn’t. Over 12 years later, I still struggle with the decision I was forced to make, which was tell the nurse to keep my father alive while I tried to reach my mother. If it had been solely up to me, I would have let my father go. But I couldn’t make that decision for my mother, and I knew she would never forgive me if I had. I eventually got hold of her and my father lived about another month before dying five days before Christmas.

One of the reasons I feel so strongly about paid leave is for those like myself who find all of the parental caregiving duties falling on their shoulders. No one should lose their job because they are caring for a loved one. It’s also why I feel so strongly about respite care, as only children may not have as robust of a support system that can come with larger families.

I enjoyed being an only child and don’t regret the lack of a larger family. But as the article mentions, only children need to be vigilant about building a support system so that when an older parent has a medical emergency, they will have resources in place to help them make informed decisions about medical care, finances, and to lean on for emotional support.

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Happy Holidays

Wishing you and your family a peaceful and restful holiday season. The cats managed to negotiate with Santa Claus and get a gift early. I would love to be a cat with my very own soft, cozy house for endless naps!

For those grieving this holiday season, I fully understand and send you supportive and healing energy.

If you need last-minute gifts, you can get the e-book version of my award-winning personal essay collection, The Reluctant Caregiver, for just 99 cents if you purchase through the Smashwords 2023 End of Year Sale. The deal is available through Jan. 1, 2024. For the kids, you can grab the digital version of my children’s book, Slow Dog, for $2.99 on Amazon Kindle.

If you are feeling a bit sad today, I hope this puts a smile on your face!

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Marking 12 years since Dad’s death

Today marks 12 years since my father died.

The years following his death have been tough, both on a personal and global level. I am grateful for having found such an amazing community of dementia caregivers and advocates who are tirelessly working to gain better resources and support. No one welcomes a diagnosis of Alzheimer’s or other forms of dementia, but my family’s experience has opened my eyes to challenges in our health care system that I otherwise would not have known about.

I began The Memories Project blog in honor of my father and will continue to advocate for better dementia care treatment and family caregiver support.

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Honoring departed loved ones during the holidays

On December 20, I will mark the 12th anniversary of my father’s death. Losing a loved one during the holiday season can usher in a mix of grief and nostalgia during subsequent holidays. There’s also a group of people who are marking their first holiday after the passing of their loved one.

Each person processes grief differently, and each person will have to decide what feels right when marking the holidays without their loved one. Over time, I’ve found the sharp pangs of recent loss wane some, replaced by a more generalized sadness.

Care Dimensions posted a helpful list of suggestions on how to remember a departed loved one during the holidays. I have found playing their favorite music or watching their favorite films can be a positive way to connect with those who have passed. I also like to light a candle and set aside dedicated time to recognize departed loved ones in the memorial areas I have both inside my home and in my garden.

You can read more about how I dealt with grief in my award-winning personal essay collection, The Reluctant Caregiver. You can get a digital copy for just 99 cents if you purchase through the Smashwords 2023 End of Year Sale.

Image by Chantelle Thompson from Pixabay.

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The need for more than self-care

Excellent post and so true, self-care in of itself is not an adequate solution for the multi-faceted support that caregivers need.

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New research finds walking just 4K steps daily offers health benefits

For caregivers who may wonder if they or the loved ones they care for get enough exercise, a new study offers recommendations that are more achievable than traditional guidelines.

According to a study published recently in the European Journal of Preventive Cardiology, walking just 4,000 steps per day is associated with a lower risk of death. A 2017 study cited by NBC found that the average person in the U.S. walks 4,774 steps per day.

I’ve been using a smart ring that tracks a variety of health-related metrics including steps. You might be surprised how many steps you log by doing daily household tasks. Cleaning, gardening, caregiving: exercise comes in many forms and offers health benefits.

For those able to move a bit more, the payoff was even better, with every 1,000 extra steps per day associated with a 15 percent reduction in a person’s overall risk of death, according to the new study. Walking has also been associated with a reduction in the risk of dementia.

But what about the 10,000 steps per day rule? That was actually based upon a Japanese marketing campaign for a pedometer, according to NBC. The number caught on and became standard, but according to a health expert interviewed by NBC, it’s a misconception and there’s a wide range of recommended daily steps depending upon age and physical ability.

I inherited my father’s love of walking. While walking didn’t prevent my father from getting dementia, it kept him lean and in decent physical health despite being diagnosed with COPD due to smoking. He would do laps at the memory care center and maintained his mobility up until the last couple of months of his life.

Photo by RDNE Stock project.

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Being a Human Being

“Stop thinking you’re a human doing. You’re a human being.” That’s a message all caregivers need to hear.

Elaine M. Eshbaugh, PhD's avatarWhen Dementia Knocks

Tonight I spoke with a caregiver. His mother has dementia and lives in a local nursing home. Previously she had been in assisted living, but it was obvious she needed more care. And it’s obvious she is progressing.

He doesn’t know what to do.

I get it. Many of us are programmed to take action. We want to fix. We want to solve. And we take pride in fixing and solving.

But sometimes there is nothing to fix or solve.

You didn’t cause dementia, and you can’t cure it. If you are like me, you think you must be missing something. Maybe there’s some puzzle to solve and you haven’t cracked it yet. There has to be answer. Perhaps if you read more books. Or look at more Facebook pages (please don’t do this).

I want to tell you it’s okay to stop. It’s okay to stop and be. Just…

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