Continuing care at home: Pricey but intriguing elder care option

hand-2906458_1920

Photo: Pixabay

I’m always on the lookout for nontraditional elder care options. As we face a growing elder population, we are going to need some out of the box thinking and smart innovation to meet the high demand for elder care and elder-friendly housing.

A recent New York Times article highlighted one such option: continuing care at-home, an offshoot of the more well-known continuing care retirement communities. The NYT refers to the at-home option as a CCRC without walls. The goal is to keep people living comfortably and safely in their homes for as long as possible and for as long as the person desires, but with the option to move into assisted living if needed.

Instead of moving into an independent living apartment on a CCRC campus, people remain at home. Members are assigned a “care navigator” who monitors their health daily living needs. This hybrid aging at home with the option for supportive home care services and residential care could be attractive to baby boomers.

However, there are some downsides. The main one is cost. While the at-home version of the CCRC is cheaper than the traditional format, it’s still requires a hefty entrance fee (typically tens of thousands of dollars) plus monthly fees. In many cases, elders sell their home and move into more affordable housing in order to cover the costs. This is not a financial option for everyone.

There are also medical requirements to enter such programs, with a dementia or Parkinson’s diagnosis, among others being disqualifiers.

So it’s not for everyone, but it could be a good compromise for those who can afford it and want to remain in their homes as long as possible.

2 Comments

Filed under Awareness & Activism

Looting the elderly via CRAIN’S COMMENTS

In my line of work I read about so many cases involving criminals preying upon the elder population. Those with dementia are particularly vulnerable. As family caregivers, be vigilant upon checking bills, bank statements, etc. There’s a fine line between allowing your elder loved one to maintain their independence and protecting them from criminals, but it’s important to be aware.


IN 2017, financial institutions filed 63,500 inquiries regarding suspected fraudulent activities involving senior clients. That’s up 400% over 2013, and may still represent 2% or less of actual crimes. Traditionally, the elderly have been victims of their own family and care-givers. Now there are concerns that they are being victimized by financial professionals they trust, […]

via Looting the elderly — CRAIN’S COMMENTS

Leave a comment

November 9, 2019 · 10:15 am

‘Home is still a hard place to die’

hospice-1794418_640_edited

Truthseeker08/Pixabay

I was interviewed for a series running on Nashville Public Radio called, “The Cost of Dying.” My interview is featured in the segment, “Home is Still a Hard Place to Die.”

I am grateful to Blake Farmer for reporting on the cost and challenges of end-of-life care. It’s a topic that is not discussed enough, until one finds themselves dealing with death in their own family.

Farmer took note of my essay, “Dying at home is not all it’s cracked up to be,” which appeared in my essay collection, The Reluctant Caregiver. That essay sparked a lot of debate on social media, because it revealed that there is another side to the aging-dying at home trend, and it’s not pretty. It’s one that family members often silently suffer through, because they feel guilty if they complain.

As it’s made clear in the Nashville Public Radio report, I am not anti-hospice by any means, and I know there are wonderful people who work in the industry. It is not a job I could imagine doing, and I think it takes a special kind of person to care for the dying and their families on a daily basis. But especially in rural areas, there are simply not enough hospice and home hospice providers available. That means the care falls upon family members, which is what I experienced with my mother. It was one of the most difficult things I’ve ever done, and while I don’t regret caring for my dying mother, I wish I had been better supported.

Farmer’s series places a spotlight on the challenges of dying at home, from interviews with family caregivers to an examination of the growing hospice industry. I encourage you to listen to the series and read the accompanying reports.

Leave a comment

Filed under Awareness & Activism

What I Wished I Knew When Dementia Was Diagnosed: Anosognosia(#1) — Dealing with Dementia

I learned a new word (anosognosia) and one that is so important for families who may suspect their loved one has Alzheimer’s or another form of dementia. It can be one of the most frustrating aspects for family members dealing with this disease.

Your loved one with dementia may not be able to recognize that anything has changed with their thinking and behavior.

Read Kay’s blog post for details.

via What I Wished I Knew When Dementia Was Diagnosed: Anosognosia(#1) — Dealing with Dementia

Leave a comment

October 24, 2019 · 6:02 pm

Study: Women may be underdiagnosed, men overdiagnosed for MCI

clock-4062400_640

joealfaraby/Pixabay

Families who have dealt with Alzheimer’s are likely familiar with the battery of tests that loved ones go through. One of the most well-known is the clock test, where one is asked to draw a clock with a specific time. While my father never was subjected to such tests that I know of, I witnessed my mother do the clock test when she became ill. She didn’t have Alzheimer’s. The tumor in her colon had made her unable to eat, and her sodium levels were out of whack, which can induce temporary delirium. The symptoms closely mimic dementia, and it was frightening to witness in my mother, just months after my father died from Alzheimer’s complications.

My mother struggled mightily to complete the test, as I wrote about previously. If you look at examples online, some people have trouble getting the hour numbers positioned correctly, while others struggle with drawing the lines to the hour and minute. It is a surprisingly simple, but informative exercise. (I’m not sure what they will do for younger generations who only know how to tell time in digital format.)

In addition to visual tasks like the clock test, testing for dementia also involves asking a person to remember a set of simple words. The person is then asked to recall those words at various time intervals.

A new study suggests that because women generally have better verbal skills compared to men, they may be underdiagnosed when it comes to mild cognitive impairment (MCI) while men may be overdiagnosed. A misdiagnosis can have a detrimental impact, either delaying potential treatments or subjecting someone to treatments with side effects. MCI can raise the risk of developing dementia.

Additional studies are needed to confirm the findings, but for those families going through diagnostic testing for dementia, gender differences are something to keep in mind. A person’s education also can help them perform better on tests, even though their brains may show significant changes associated with dementia.

Leave a comment

Filed under Awareness & Activism

Caregiving 101: Maintain Your Life While Maintaining Theirs — The Diary of An Alzheimer’s Caregiver

This is an excellent, detailed post for first-time caregivers. Please share with those who are embarking on a family caregiving experience.

Giving your time and resources to loved ones brings feelings of delight and satisfaction while also attracting emotions of a heavy burden. Becoming a caregiver can be an extraordinarily taxing responsibility for many individuals, and therefore should not be taken lightly …

Read full post via Caregiving 101: Maintain Your Life While Maintaining Theirs — The Diary of An Alzheimer’s Caregiver

Leave a comment

October 10, 2019 · 12:17 pm

Investigative series on Georgia’s senior care industry a worthwhile read

senior-599806_640_edited

My local newspaper (and former employer, I must disclose) has unveiled an investigative reporting project that is putting a much-needed spotlight on the rampant deficiencies in Georgia’s senior care communities. The Atlanta Journal-Constitution’s Unprotected series recounts heartbreaking stories of abuse and neglect, how potential crimes were never reported to law enforcement and how residents are at risk no matter how upscale a community markets itself to be.

If you’ve ever had a loved one in a senior care facility, you likely will be able to relate to the reports included in this series. Families know all too well that such facilities are chronically understaffed and offer such poor pay that those with questionable backgrounds who lack professional experience are often hired. While family members struggle to pay the several thousand dollars a month that these facilities charge, their loved ones may be suffering and unable to defend themselves.

My parents spent time in care facilities in New Mexico, and I saw first-hand the deficiencies. My father suffered multiple falls and an altercation with a fellow resident at his memory care center. The center used an off-label medication to help keep the patients with severe dementia “more manageable.” It’s a common tactic used at such facilities, though of course none would admit it on record.

My mother’s facility was woefully understaffed, leading to my mother not being cleaned after soiling herself, and almost getting the wrong medication or treatment multiple times. It was only because I could be there daily as her patient advocate that further harm to her was avoided. When the laundry facilities broke down for a week, my mother had to used soiled towels and linens, putting her compromised immune system at risk of infection.

I hope you get a chance to read the Unprotected series and share with others. Encourage your local newspaper to conduct similar investigations if they haven’t already. The more that these criminal acts can be exposed, the greater chance we have in forcing changes in a corrupt system that is putting our elder loved ones at risk.

Leave a comment

Filed under Awareness & Activism