I learned a new word (anosognosia) and one that is so important for families who may suspect their loved one has Alzheimer’s or another form of dementia. It can be one of the most frustrating aspects for family members dealing with this disease.
Your loved one with dementia may not be able to recognize that anything has changed with their thinking and behavior.
Read Kay’s blog post for details.
via What I Wished I Knew When Dementia Was Diagnosed: Anosognosia(#1) — Dealing with Dementia
This is an excellent, detailed post for first-time caregivers. Please share with those who are embarking on a family caregiving experience.
Giving your time and resources to loved ones brings feelings of delight and satisfaction while also attracting emotions of a heavy burden. Becoming a caregiver can be an extraordinarily taxing responsibility for many individuals, and therefore should not be taken lightly …
Read full post via Caregiving 101: Maintain Your Life While Maintaining Theirs — The Diary of An Alzheimer’s Caregiver
It’s something we don’t talk enough about, but it is so important: self-care. I know that phrase has become a bit touchy in certain circles, because it can seem like you are dumping one more responsibility on an already overworked caregiver. The sad truth is that in most cases, no one is going to offer you a respite out of the blue. You have to know your limits as a caregiver, ask for help when needed and yes, take care and be kind to yourself.
Read these helpful self-care tips via the blog post below from The Diary of An Alzheimer’s Caregiver.
Sign up to get these posts and a whole lot more delivered right to your inbox! The Diary of An Alzheimer’s Caregiver – Appreciate the good, laugh at the crazy, and deal with the rest! Caregiving is hard no matter what. Alzheimer’s caregivers, however, have an especially difficult job. Not only do people with Alzheimer’s…
via 4 Realistic Self-Care Strategies for Alzheimer’s Caregivers — The Diary of An Alzheimer’s Caregiver
This is such important information for family caregivers. To put it bluntly, a fall for a frail loved one can signal the beginning of the end. Both my mother and father experienced falls as their health situations declined. Learn more and tips on preventing falls from Kay Bransford.
via Falls are Game Changers for Older Adults
Those who have faced Alzheimer’s or other dementias in their families know that it can be a dreadful roller coaster ride, and while in the early stages there may be quite a few “good” days, they often seem overshadowed by the “bad” days.
One man in the UK who has early-onset Alzheimer’s is hoping to send a different, more hopeful message. He is using his beloved hobby of cycling to spread the message across the country.
Peter Berry was diagnosed with early-onset Alzheimer’s at 50, after 3 long years of trying to obtain a diagnosis for his increasingly troubling symptoms. He sank into a deep depression for about a year, but when he emerged, he was determined to help others who find themselves in a similar situation. Through a video series and on social media, Berry shares his experience and what has worked for him, including a healthy diet, regular sleep and long bike rides.
While he’s under no illusion as to what Alzheimer’s ultimately holds in store, he stresses the importance of having a positive outlook: “People who suffer from the disease know the journey and path we’re taking. We all know the end product of this disease. But it’s all about what you do in between. It is not about what I can’t do, but what I can do.”
Watch his inspiring story, produced by Being Patient, and share with others.
I am so proud to be part of the AlzAuthors group. I can’t believe the group of Alzheimer’s and dementia writers is marking its 4th anniversary! It has been so rewarding to see this group expand over the years and I applaud the hard work of the core founders who have shared our books to caregivers around the world.
If you haven’t visited the website in awhile, check out the redesign. I love it!
To mark the occasion, AlzAuthors is hosting a book sale and raffle. Choose from 19 free and discounted books. My award-winning collection of personal essays, The Reluctant Caregiver, is just 99 cents during the promotion, which runs through June 27th. (Note: Amazon is still processing the discounted rate as of Friday morning, but you can use this link to buy the book for 99 cents at other major digital book retailers right now.)
You can also enter a raffle to win free books from select AlzAuthors contributors.
Please spread the word to fellow dementia caregivers and thank you for your support!